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Peer reviewed
Direct linkIon, Sandica; Lightfoot, Elizabeth – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Much of the research and program innovation regarding future planning for adults with intellectual disabilities has occurred in countries with well-developed disability service systems. This study explored how family caregivers planned for their adult children's future caregiving needs in Romania, a country with a limited array of…
Descriptors: Caregiver Attitudes, Planning, Adults, Intellectual Disability
Dawn E. Cavanagh; Sue Caton; Jodie Rawles; Katherine Runswick-Cole; Chris Hatton; Umesh Chauhan; Christine Hutchinson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities are more likely to be prescribed psychotropic medication than the general population and are frequently prescribed multiple medications. Understanding people with intellectual disabilities and carer perspectives is essential to improving the quality of psychotropic medication prescribing and usage.…
Descriptors: Literature Reviews, Patients, Intellectual Disability, Drug Therapy
Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Helen K. Røstad-Tollefsen; Benedicte Hagen Venås; Svein O. Kolset; Kjetil Retterstøl; Hanne Hennig Havdal; Marianne Nordstrøm – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff working in municipal care homes with adults with intellectual disabilities impact their diet significantly. Aim: To explore how external factors influence staff's motivation and performance of nutritional work with these residents. Method: Semi-structured qualitative interviews with 11 staff using systematic text condensation for…
Descriptors: Adults, Intellectual Disability, Residential Institutions, Residential Care
Kelly, Kathyan; Margaret, Haigh; McCarron, Mary; McCallion, Philip; Burke, Eilish; Wormald, Andrew David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Death
McKenzie, Karen; Armitage, Bethan; Murray, George; James, Ian – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Therapeutic untruths (TU) are used in dementia services to de-escalate distressing situations. The present authors explored the use of TU by care staff supporting people with an intellectual disability who displayed behaviours that challenged. Method: Data were collected from 126 staff (female = 72.2%; mean age = 41.9 years, SD = 10.7)…
Descriptors: Stress Management, Dementia, Intellectual Disability, Behavior Problems
McCarthy, Michelle; Clawson, Rachael; Patterson, Anne; Fyson, Rachel; Khan, Luftha – Journal of Applied Research in Intellectual Disabilities, 2021
Background: People with intellectual disabilities are at increased risk of forced marriage compared to those without intellectual disabilities. In the UK, this risk is particularly, though not exclusively, associated with South Asian communities and is linked to the desire to secure long-term care. Method: Focus groups and semi-structured…
Descriptors: Marriage, Learning Disabilities, Foreign Countries, Ethnicity
Sumithra Murthy; Sarah Parker Harris; Kelly Hsieh – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the…
Descriptors: Foreign Countries, Intellectual Disability, Developmental Disabilities, Caregivers
Embregts, Petri J. C. M.; Tournier, Tess; Frielink, Noud – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present study aimed to explore the experiences and needs of direct support staff during the initial stage of the COVID-19 lockdown in the Netherlands. Method: Overall, eleven direct support staff were recruited from five intellectual disability services to participate in this descriptive qualitative study. They recorded 34 audio…
Descriptors: Foreign Countries, COVID-19, Pandemics, Intellectual Disability
Chicas, Vanessa E.; Steinway, Caren; Chen, Jack; Schwartz, Matthew C.; Wright, Charmaine; Cornacchia, Michelle; Davis, Thomas W.; Berens, John C.; Riddle, Ilka; Woodward, Jason F.; Jan, Sophia – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Long Range Planning
Røstad-Tollefsen, Helen K.; Kolset, Svein O.; Retterstøl, Kjetil; Hesselberg, Heidi; Nordstrøm, Marianne – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Adults with intellectual disabilities living in residential houses have a high prevalence of obesity which is related to poor dietary habits. Aim: The aim of this study was to assess supporting staff`s thoughts and experiences on factors influencing their opportunities to promote a healthy diet in adults with intellectual disabilities.…
Descriptors: Adults, Intellectual Disability, Physical Health, Health Promotion
Hanzen, Gineke; Waninge, Aly; van Nispen, Ruth M. A.; Vlaskamp, Carla; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: We investigated the effects of the "Care for Participation+" (CFP+) intervention on direct support professionals' (DSPs') attitudes regarding the participation of adults with visual and severe or profound intellectual disabilities (VSPID). Methods: We implemented a pilot non-randomized controlled trial with two control groups…
Descriptors: Intervention, Allied Health Personnel, Caregiver Attitudes, Attitudes toward Disabilities
McKenzie, Judith Anne; Kahonde, Callista; Mostert, Karen; Aldersey, Heather Michelle – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Families struggle to support family members with profound intellectual and multiple disabilities (PIMD), especially in low resourced settings where formal services may not be available. Method: The adapted Family Community Participation survey, measuring perceptions of community participation, was administered to 67 primary caregivers…
Descriptors: Family Involvement, Family Needs, Community Services, Child Caregivers
Kuijper, Gerda M.; Hoekstra, Pieter J. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Results of discontinuation of antipsychotics in people with intellectual disability are variable and may depend on staff factors. Method: We attempted to taper off antipsychotics in 14 weeks after which participants were free to restart. We investigated the influence of support professionals' feelings towards challenging behaviour,…
Descriptors: Intellectual Disability, Drug Therapy, Behavior Problems, Depression (Psychology)
Talman, Lena; Wilder, Jenny; Stier, Jonas; Gustafsson, Christine – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. Aim: To describe staff members' perceptions of what participation means for adults…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Adults, Participation
