Caregiver coaching is an evidence-based practice for autistic children that is poorly implemented in community-based early intervention. Previous studies have identified factors that influence implementation of caregiver coaching in early intervention; however, multi-informant (e.g., caregiver, provider, leadership) qualitative research is…

This study examined the experiences of Hmong American parents who navigate the U.S. public school system through Hmong American charter schools. The purpose of this study was to determine the successes and challenges, as defined and described by Hmong American parents, in the hope of creating a positive and effective educational experience for…

The purpose of this qualitative research study was to explore the experiences of caregivers who advocate for a child with social anxiety. Parents of a child diagnosed with social anxiety describe similar experiences and challenges. Often parents adopt the role of advocate in order to obtain the necessary school services for their child. This…

Caregiver coaching is an evidence-based practice for young autistic children, but it is not widely used in community-based early intervention services. Previous research has explored why caregiver coaching is not widespread in early intervention, but only from the perspective of early intervention providers. Caregivers, providers, and…

Understanding caregivers' needs is crucial for service planning and empowering caregivers around the world. Although research on autism from Arab countries is emerging, many countries are still unrepresented. Moreover, within-country disparities are understudied. This study investigated differences in needs, service use, and satisfaction between…

Special education knowledge may be a key factor for caregivers when accessing services at school however, few studies have compared linguistic differences while highlighting Spanish-speaking families' experiences (Burke et al, 2021; Trainor, 2010), A quasi-experimental survey design was selected to quantitatively answer the following research…

Purpose: To investigate the perceptions of parents/caregivers about the impact of oral conditions on the oral health-related quality of life (OHRQoL) of children/adolescents with autism spectrum disorder (ASD) compared to the perceptions of parents/caregivers of children/adolescents without ASD. Methods: A comparative cross-sectional study was…

This dissertation presents a qualitative study exploring the motivations behind parents' and guardians' decisions to enroll and maintain their elementary-aged children in a residential school setting. The study identified three key factors influencing these decisions: the pursuit of non-financial stability, the desire for reputable education, and…

Recognizing the multifaceted and chronic demands on families of children with Autism Spectrum Disorder (ASD) and challenges in providing care matched to need, we adapted the Psychosocial Assessment Tool (PAT), a brief caregiver-report screener of family psychosocial risk, for this population. Study methods included literature review, focus groups…

Objective: The aim of this study was to explore the range of experiences encountered by parents and caretakers of children with autism spectrum disorder. Materials and methods: An inductive conventional content analysis approach was utilized for this study. Twenty-four (N = 24) parent responses to open-ended questions about their experience…

Background: An emerging body of literature explores the impact of living with developmental language disorder (DLD) on children, individuals and families. This work has identified a range of challenges and strengths. However, there is limited evidence from the DLD community about the impacts of living with DLD in relation to parenting. Aims: We…

Parents with young children receiving relationship-based home visiting and infant and early childhood mental health (IECMH) services want flexibility and hybrid approaches that combine in-person and remote services. This is the top finding from a national study of parents served by seven geographically and demographically diverse program sites…

This study aimed to describe the impact that autistic characteristics (core features of autism and co-occurring conditions) have on interactions with police. Twelve autistic adults and 19 parent/carers were interviewed about interactions with police in the past 5 years. Using content analysis, it was found that in most (92.3%) interactions,…

Early intervention (EI) plays a crucial role in supporting infants and toddlers with developmental needs and helping families understand how to meet their child's needs. However, once a child reaches the age of three, these services come to an end and families must transition to school services. Surprisingly, there is a lack of research focusing…

Embracing parental advocacy is pivotal in navigating the challenges associated with autism spectrum disorder (ASD). Such challenges include stress, stigmas, educational challenges, and access to support and services. This study's purpose was to examine parents' and adult primary caregivers' perspectives when advocating for an individual with ASD.…