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Homeward Bound: Exploring the Motives of Mothers Who Brought Their Offspring with Intellectual Disabilities Home from Residential Settings during the COVID-19 Pandemic
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Vereijken, Frances R.; Giesbers, Sanne A. H.; Jahoda, Andrew; Embregts, Petri J. C. M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: At the start of the COVID-19 pandemic, some parents in the Netherlands decided to bring their offspring with intellectual disabilities, who normally live in residential care, home. The present study explored why the mothers decided to bring their offspring home. Method: Interviews were carried out with seven mothers of adults with…
Descriptors: Mothers, Motivation, Adults, Intellectual Disability
Providing Person-Centred Care to Older People with Intellectual Disabilities during the COVID-19 Pandemic: Experiences of Direct Support Workers
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Thalen, Marloes; van Oorsouw, Wietske M. W. J.; Volkers, Karin M.; Frielink, Noud; Embregts, Petri J. C. M. – International Journal of Developmental Disabilities, 2023
Background: Although the current preventive measures relating to COVID-19 can lead to challenges in the daily work of direct support workers (e.g. keeping 1.5 m distance), it remains vital to uphold the principles of person-centred care when working with older people with intellectual disabilities. The current study explores the extent to which…
Descriptors: COVID-19, Pandemics, Older Adults, Intellectual Disability
Experiences and Needs of Direct Support Staff Working with People with Intellectual Disabilities during the COVID-19 Pandemic: A Thematic Analysis
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Embregts, Petri J. C. M.; Tournier, Tess; Frielink, Noud – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present study aimed to explore the experiences and needs of direct support staff during the initial stage of the COVID-19 lockdown in the Netherlands. Method: Overall, eleven direct support staff were recruited from five intellectual disability services to participate in this descriptive qualitative study. They recorded 34 audio…
Descriptors: Foreign Countries, COVID-19, Pandemics, Intellectual Disability
Reducing Restrictive Measures in Complex Long-Term Care for People with Intellectual Disabilities: Implementation Interventions through the Lens of Normalisation Process Theory
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Bisschops, Esther H.; de Schipper, J. Clasien; Schippers, Baukje; Embregts, Petri J. C. M.; Schuengel, Carlo – Journal of Intellectual & Developmental Disability, 2022
Background: The multi-disciplinarity of long-term care for people with intellectual disabilities makes organisations seek stability and predictability, complicating implementing innovations. Interventions to implement a method for reducing restrictive measures were analysed through the lens of Normalisation Process Theory to understand the social…
Descriptors: Health Services, Intellectual Disability, Social Influences, Normalization (Disabilities)
Perceptions of Staff and Family of the Quality of Life of People with Severe to Profound Intellectual Disability
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de Geus-Neelen, Karin C. J. M.; van Oorsouw, Wietske M. W. J.; Hendriks, Lex A. H. C.; Embregts, Petri J. C. M. – Journal of Intellectual & Developmental Disability, 2019
Background: Staff and relatives often act as advocates for people with severe to profound intellectual disability (ID). Since staff and relatives make proxy judgements about quality of life for people with severe to profound ID, it is important to know how well the perceptions of the two groups correspond with each other. Method: Fifty-one…
Descriptors: Severe Intellectual Disability, Quality of Life, Decision Making, Empowerment