Non-disabled siblings of individuals with intellectual and developmental disabilities (IDD) usually experience trajectories to gradually intensify their involvement in caregiving. However, non-disabled siblings in Asian countries have been woefully overlooked in research despite the fact that Asian countries hold over half of the world's…

Caregiver-implemented interventions are increasingly utilized to address the needs of families of autistic children. The purpose of this systematic review was to synthesize the studies evaluating interventions implemented by caregivers of autistic teens and young adults. We identified 10 studies that evaluated the efficacy of a…

Children with invasive mechanical ventilation (IMV)(ventilation delivered through an endotracheal tube), often require 24/7 monitoring and care by skilled caregivers in order to stay safely within the home environment. Practice standards recommend skilled in-home nursing to maintain safe monitoring practices. However, across the country, a lack of…

Many persons with intellectual and developmental disabilities are at risk for injury and physical harm due to unsafe environmental conditions. The present study addressed safety practices among care providers responsible for preventing access to hazardous materials among residential students living in two group homes. In a multiple baseline across…

Many people with intellectual disabilities (ID) depend on caregivers for pain identification and pain management decisions. Therefore, the aim was to explore caregivers' experience with pain in Prader-Willi syndrome (PWS), Williams syndrome (WS), and Fragile-X syndrome (FXS). A questionnaire was developed to gather third-party reporting of mainly…

In many aging families, siblings provide important support to adult brothers or sisters with an intellectual disability. However, this presents new challenges that are affected by past relationships and roles, as well as by the current situation and changes brought on by aging. This study aims to explore the ways in which middle aged typical…

The occurrence of 'challenging' behavior is commonly documented amongst people with intellectual and developmental disabilities (IDD). Since behavior is not only a form of communication, but often in response to environmental conditions, it stands to reason that one mechanism to reduce 'challenging' behaviors would be to draw attention to people's…

This study examined the links between maternal caregiving burden and maternal and child adjustment, and whether these links were mediated and moderated by maternal coping strategies. Cross-sectional data were collected from 173 Chinese families with kindergarten aged children with special needs in Hong Kong, China (mean age = 61.53 months; 72% of…