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Melanie Pellecchia; Melissa Maye; Liza Tomczuk; Nicole Zhong; David S. Mandell; Aubyn C. Stahmer – Grantee Submission, 2024
Caregiver-mediated interventions for young autistic children are increasingly considered standard of care. These interventions share two sets of components: strategies to improve children's communication, behavior, and development; and procedures to coach caregivers to implement those strategies. To date, no review has examined how caregiver…
Descriptors: Young Children, Autism Spectrum Disorders, Intervention, Caregiver Role
Melanie Pellecchia; Melissa Maye; Liza Tomczuk; Nicole Zhong; David S. Mandell; Aubyn C. Stahmer – Infants and Young Children, 2024
Caregiver-mediated interventions for young autistic children are increasingly considered standard of care. These interventions share two sets of components: strategies to improve children's communication, behavior, and development; and procedures to coach caregivers to implement those strategies. To date, no review has examined how caregiver…
Descriptors: Young Children, Autism Spectrum Disorders, Intervention, Caregiver Role
Lowe, Paige – ProQuest LLC, 2022
This study examined the effectiveness of caregiver consultations in caregiver's child's play therapy process through a program evaluation lens. Archival data was used from a counseling clinic located in the central southwestern United States. Quantitative data was collected from caregiver who filled out assessments (PSI-4 and CBCL) about their…
Descriptors: Play Therapy, Caregivers, Persistence, Dropout Rate
Heather H. Kelley; Ty B. Aller; Matthew Wappett – Journal of Mental Health Research in Intellectual Disabilities, 2024
Background: Direct Support Professionals (DSP) work closely with individuals with intellectual and developmental disabilities (I/DD) and can play an important role in helping these individuals get treatment when they are also experiencing mental health concerns (MHC). Methods: We employed a systematic review search techniques to identify 15…
Descriptors: Intellectual Disability, Developmental Disabilities, Mental Health, Staff Development
Schaap, Feija D.; Dijkstra, Geke J.; Reijneveld, Sijmen A.; Finnema, Evelyn J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The ageing of people with intellectual disabilities, with associated morbidity like dementia, calls for new types of care. Person-centred methods may support care staff in providing this, an example being Dementia Care Mapping (DCM). DCM has been shown to be feasible in ID-care. We examined the experiences of ID-professionals in using…
Descriptors: Aging (Individuals), Older Adults, Intellectual Disability, Dementia
Helen K. Røstad-Tollefsen; Benedicte Hagen Venås; Svein O. Kolset; Kjetil Retterstøl; Hanne Hennig Havdal; Marianne Nordstrøm – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff working in municipal care homes with adults with intellectual disabilities impact their diet significantly. Aim: To explore how external factors influence staff's motivation and performance of nutritional work with these residents. Method: Semi-structured qualitative interviews with 11 staff using systematic text condensation for…
Descriptors: Adults, Intellectual Disability, Residential Institutions, Residential Care
Chun-Yu Chiu – Journal of Developmental and Physical Disabilities, 2022
Non-disabled siblings of individuals with intellectual and developmental disabilities (IDD) usually experience trajectories to gradually intensify their involvement in caregiving. However, non-disabled siblings in Asian countries have been woefully overlooked in research despite the fact that Asian countries hold over half of the world's…
Descriptors: Siblings, Adults, Developmental Disabilities, Intellectual Disability
Esther H. Bisschops; J. Clasien de Schipper; Zina Salhi; Petri J.C.M. Embregts; Carlo Schuengel – Journal of Intellectual & Developmental Disability, 2024
Background: Intellectual disability organisations in the Netherlands are seeking to improve clients' quality of care by implementing methods that reduce involuntary care. This study described insights gained from sharing tacit and experiential implementation knowledge in Communities of Practice (CoP). Method: In a participatory research, managers,…
Descriptors: Intellectual Disability, Communities of Practice, Foreign Countries, Caregiver Role
Jessica Hughes; Ruth Roberts; Joanne Tarver; Cheryl Warters-Louth; Betty Zhang; Emma Southward; Rachel Shaw; Georgina Edwards; Jane Waite; Effie Pearson – Autism: The International Journal of Research and Practice, 2024
Autistic individuals with intellectual disability are at greater risk of experiencing anxiety than their non-autistic peers without intellectual disability. Anxiety in this group may present as behaviour that challenges, often leading families to reach out to healthcare or support services. However, many families experience difficulties accessing…
Descriptors: Autism Spectrum Disorders, Caregivers, Intellectual Disability, Access to Health Care
Lauren T. Ptomey; Kelli Barton; Emma Swinford; Amy Bodde; Amanda George; Anna M. Gorczyca; C. Michelle Niedens; Susan C. Sprague; Amy Yeager; Brian Helsel; Linda Teri; Eric D. Vidoni; Jaime Perales-Puchalt – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The Reducing Disability in Alzheimer's Disease in Kansas City (RDAD-KC) intervention has been shown to improve the health of individuals with dementia and caregiver dyads. This manuscript reports the results of implementing the RDAD among individuals with intellectual disabilities and caregiver dyads. Methods: Nine community agencies…
Descriptors: Alzheimers Disease, Intervention, Health Promotion, Caregivers
Brennan, Damien; D'eath, Maureen; Dunne, Nikki; O'Donovan, Mary-Ann; McCallion, Philip; McCarron, Mary – Journal of Intellectual Disabilities, 2023
This paper explores contemporary Irish social policy for family caregivers with specific focus on the dynamic between the individual, the family and the state in terms of the social contract for care provision for people with intellectual disability. Drawing from Bacchi's analytical framework (Bacchi, 2009), the Irish National Carers' Strategy is…
Descriptors: Public Policy, Caregivers, Intellectual Disability, Family Role
Kelly, Kathyan; Margaret, Haigh; McCarron, Mary; McCallion, Philip; Burke, Eilish; Wormald, Andrew David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Death
Hedayioglu, Julie; Marsden, Sue; Sackree, Amy; Oliver, David – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured…
Descriptors: Caregivers, Residential Care, Group Homes, Intellectual Disability
Doodeman, Tanja W. M.; Schuengel, Carlo; Sterkenburg, Paula S. – Journal of Intellectual & Developmental Disability, 2022
Background: People with severe to profound intellectual disabilities have particular needs for others to help them regulate stress. Such support may be hampered by difficulties in detecting and interpreting expressions of stress. This study aimed to describe and identify stress-related behaviours and sensitive, stress-regulating responses to these…
Descriptors: Intellectual Disability, Severity (of Disability), Caregivers, Stress Variables
Hatzikiriakidis, Kostas; O'Connor, Amanda; Savaglio, Melissa; Skouteris, Helen; Green, Rachael – International Journal of Disability, Development and Education, 2023
A high prevalence of maltreatment, abuse, neglect and the onset of subsequent trauma has been well-documented among both young people with disability and young people residing in foster and kinship care. However, no uniform policies or guidelines currently exist for the delivery of trauma-informed models of care to build the capacity of foster and…
Descriptors: Trauma Informed Approach, Child Abuse, Child Neglect, Disabilities