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Lisa Koenig McDaniel – ProQuest LLC, 2023
The purpose of this qualitative phenomenology design was to describe the experiences of caregivers to adults with I/DD in the State of Texas. The theory guiding this study was the social constructivism framework which focused on how language and culture frame how individuals communicate, experience, and understand reality. In this study, the…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Quality of Life
Brennan, Damien; D'eath, Maureen; Dunne, Nikki; O'Donovan, Mary-Ann; McCallion, Philip; McCarron, Mary – Journal of Intellectual Disabilities, 2023
This paper explores contemporary Irish social policy for family caregivers with specific focus on the dynamic between the individual, the family and the state in terms of the social contract for care provision for people with intellectual disability. Drawing from Bacchi's analytical framework (Bacchi, 2009), the Irish National Carers' Strategy is…
Descriptors: Public Policy, Caregivers, Intellectual Disability, Family Role
Bailey A. Hendricks; Marie A. Bakitas; J. Nicholas Odom; Emily E. Johnston; Gwendolyn Childs; Melinda S. Kavanaugh – Child & Youth Care Forum, 2024
Background: Due to the progressive deterioration of motor, cognitive, and psychological function, individuals with Huntington's disease (HD) rely heavily on family caregivers, including children in the home. This "young carer" role can result in responsibilities that are inappropriate for the child's age and abilities. Also referred to…
Descriptors: Diseases, Caregiver Role, Child Caregivers, Well Being
Moura, Ana; Magalhães, Patrícia; Pais, Sofia Castanheira; Alves, Elisabete – American Journal of Health Education, 2023
Background: Systematic knowledge about stroke adaptation can be a useful tool to develop evidence-based policies and practices centered on survivors and informal caregivers. Purpose: This scoping review summarizes the body of knowledge about the adaptation processes after stroke. Methods: Based on PRISMA-ScR guidelines, databases were searched, in…
Descriptors: Neurological Impairments, Caregivers, Coping, Adjustment (to Environment)
Catherine P. Bradshaw; Heather McDaniel; Elise T. Pas; Katrina J. Debnam; Jessika H. Bottiani; Nicole Powell; Nicholas S. Ialongo; Antonio Morgan-Lopez; John E. Lochman – Grantee Submission, 2025
We report findings from a 40 middle school randomized controlled trial of an adapted version of Coping Power (Lochman & Wells, 2002a) for middle schoolers, called the Early Adolescent Coping Power (EACP) Program (Bradshaw et al., 2019) to determine the impact of EACP on adolescents' mental health outcomes, as indicated by student self-reported…
Descriptors: Middle School Students, Early Adolescents, Coping, Program Effectiveness
Nanda de Knegt – Journal of Developmental and Physical Disabilities, 2023
Many people with intellectual disabilities (ID) depend on caregivers for pain identification and pain management decisions. Therefore, the aim was to explore caregivers' experience with pain in Prader-Willi syndrome (PWS), Williams syndrome (WS), and Fragile-X syndrome (FXS). A questionnaire was developed to gather third-party reporting of mainly…
Descriptors: Pain, Intellectual Disability, Identification, Caregiver Role
Hila Avieli – Journal of Developmental and Physical Disabilities, 2020
In many aging families, siblings provide important support to adult brothers or sisters with an intellectual disability. However, this presents new challenges that are affected by past relationships and roles, as well as by the current situation and changes brought on by aging. This study aims to explore the ways in which middle aged typical…
Descriptors: Sibling Relationship, Caregiver Role, Intellectual Disability, Altruism
Izci, Burcu; Geesa, Rachel Louise; Chen, Shiyi; Song, Hyuksoon S. – Journal of Research in Education, 2023
This study explored the daily routines of caregivers and the coping behaviors of both children and caregivers during the novel coronavirus (COVID-19) global pandemic. We collected data from ten caregivers and their children through caregiver and child interviews, and a caregiver survey in the Summer of 2020. We used descriptive statistics, and…
Descriptors: Coping, Caregivers, Children, COVID-19
Kroll, Aleksandra; Karakiewicz, Beata – International Journal of Language & Communication Disorders, 2020
Background: There is a wide agreement that family and friends of people with aphasia (PWA) can play a crucial role in the rehabilitation of interpersonal communication. Therefore, speech and language therapists (SLTs) should include family and friends in the process of therapy. However, little has been said about the role of caregivers of severely…
Descriptors: Caregiver Attitudes, Caregivers, Emotional Intelligence, Personality Traits
Skye L. McDonald – ProQuest LLC, 2021
Study One Abstract, Introduction: Individuals with disabilities (IWDs) struggle to access health services that they need which ultimately leads to poorer overall health outcomes and health disparities. IWDs often rely on surrogate decision-makers, or caregivers, to help them make important health decisions. Therefore, the aims of the current study…
Descriptors: Caregiver Role, Access to Health Care, Disabilities, Health Services
Cummings, Cory; Dunkle, Jennifer; Koller, Jeanne; Lewis, Jack B.; Mooney, Loretta – Journal of Social Work Education, 2023
This study captured experiences of MSW and BSW students during COVID-19 across a number of life domains (i.e., class, field, personal coping and well-being, homelife, and employment). An electronic survey was administered, with a sample size of 65 students from two universities. Descriptive and bivariate analyses were conducted. A majority of…
Descriptors: College Students, Graduate Students, Social Work, Professional Education
Xiaomin Li; Chun Bun Lam; Kevin Kien Hoa Chung – Journal of Developmental and Physical Disabilities, 2020
This study examined the links between maternal caregiving burden and maternal and child adjustment, and whether these links were mediated and moderated by maternal coping strategies. Cross-sectional data were collected from 173 Chinese families with kindergarten aged children with special needs in Hong Kong, China (mean age = 61.53 months; 72% of…
Descriptors: Foreign Countries, Mothers, Caregiver Role, Barriers
Lisa O'Donnell; Fay Keys; Shirley Thomas; Norma Love-Schropshire; Kendra Wells; Debra Patterson – Journal of Teaching in Social Work, 2024
The emergence of a global emergency, COVID-19, forced social work programs to shift to virtual teaching, disrupting students' learning abruptly. Social work students reported negative impacts from the pandemic on academic functioning as well as financial and emotional wellbeing. This study examines the relationships between demographic predictors…
Descriptors: Social Work, Counselor Training, Undergraduate Students, Student Characteristics
Dimachkie Nunnally, Amanda; Sterrett, Kyle; Gulsrud, Amanda; Kasari, Connie – Autism: The International Journal of Research and Practice, 2021
Children with autism spectrum disorder exhibit challenges in regulating negativity and modifying emotional responses, a process known as emotion regulation. Such challenges affect social outcomes and response to intervention in children with autism spectrum disorder. Caregivers of children with autism spectrum disorder facilitate children's…
Descriptors: Autism, Pervasive Developmental Disorders, Toddlers, Behavior Problems
Szymanski, Antonia; Wrenn, Melissa – Roeper Review, 2019
The cognitive perceptions that enable gifted children to process academic information in superior ways also qualitatively impact the psychosocial dimensions of their lives. Overexcitabilities represent common super-sensitive areas in gifted children. However, giftedness does not end with adulthood and neither do the complex processes of…
Descriptors: Adults, Gifted, Social Isolation, Peer Relationship