Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured…

Background: People with severe to profound intellectual disabilities have particular needs for others to help them regulate stress. Such support may be hampered by difficulties in detecting and interpreting expressions of stress. This study aimed to describe and identify stress-related behaviours and sensitive, stress-regulating responses to these…

In South Africa, many infants spend more time with carers other than their parents due to socio-economic demands on mothers. Carers thus play an important role in the infants' lives. This qualitative study explored child carers' knowledge and understanding of the 'first 1000 days' initiative and their perception of themselves as attachment…

A high prevalence of maltreatment, abuse, neglect and the onset of subsequent trauma has been well-documented among both young people with disability and young people residing in foster and kinship care. However, no uniform policies or guidelines currently exist for the delivery of trauma-informed models of care to build the capacity of foster and…

Background: We aimed to gain more insight into autonomy of older people with intellectual disabilities in a residential care facility in making choices. Methods: We performed a descriptive ethnographic study in a residential facility in the Netherlands for 22 persons, aged 54-89 years, with mild to moderate intellectual disabilities (IQ <70)…

Sisters and brothers play an important role in the lives of their siblings with intellectual and developmental disabilities (IDD), starting in childhood and commonly increasing in adulthood. The current study compared typically-developing adult sisters' and brothers' level of involvement in the care of their siblings with IDD. Beyond this, the…

Background: Study of frailty in adults with intellectual and developmental disabilities (IDD) is relatively new. To build the body of literature, an international consensus statement on how to support adults with IDD as they become frail was developed based on fictional cases. This study examined the face validity and applicability of the…

Children learn words in environments where there is considerable variability, both in terms of the number of possible referents for novel words, and the availability of cues to support word-referent mappings. How caregivers adapt their gestural cues to referential uncertainty has not yet been explored. We tested a computational model of…

Scholarship remains divided about whether emotional labor is 'skilled'. Interrogating gendered skill constructs that render emotions in work invisible, I examine two organizational contexts in the Early Childhood Education and Care (ECEC) sector: family and center-based care. I draw from 43 interviews, primarily with Latina and White women…

Parental involvement in education has taken on a new importance in contemporary society as a result of the rise of ideas associated with 'parental determinism', the desire of neoliberal states to shift responsibility for educational outcomes onto families, and the increasing salience of educational qualifications in processes of social…

Purpose: The purpose of this study is to explore caregiver and family quality of life in families with children with autism spectrum disorder (ASD). To better understand the experience of caregivers and families of children with ASD, a family systems perspective using constructs from a psychosocial adjustment model of disability (i.e., role impact…

Evidence-based practice (EBP) requires professionals to be guided by the best available evidence. When a child is diagnosed with autism spectrum disorder (ASD), caregivers are faced with the task of choosing the best treatment for their child. Caregivers turn to a number of different sources to find information about available treatments not all…

School nurses are crucial to addressing adolescent mental health, yet evidence concerning their evolving role has not been synthesized to understand interventions across levels of practice (i.e., individual, community, systems). We conducted an integrative review of school nurse roles in mental health in the U.S. related to depressive symptoms,…

Background: Physical, financial, social and emotional demands placed on caregivers caring for their children with severe intellectual disabilities (CWSID) could lead to high levels of burden. Aim: This study aimed to evaluate the potential level of burden experienced by South African caregivers and aimed to identify possible contributing risk…

The objective of the research was to analyze the scientific production regarding accident prevention in early child rearing institutions. An integrative literature review, referring to the years between 2011 and 2021, whose research was carried out in May 2021 in seven information resources, raised the following issue: it was found that not all…