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Direct linkBurke, Meghan M.; Rios, Kristina; Aleman-Tovar, Janeth; Lee, Chung eun; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2020
Background: As adults with intellectual and developmental disabilities (IDD) have longer lives, parents may remain caregivers into old age. In addition, it is unknown who will fulfil caregiving roles after parents are no longer able to be caregivers. In the current study, we explored the nature (e.g. number of hours of caregiving) and correlates…
Descriptors: Correlation, Caregivers, Caregiver Role, Parents
Lee, Chung Eun; Burke, Meghan M.; Perkins, Elizabeth A. – Intellectual and Developmental Disabilities, 2022
Aging family caregivers of adults with intellectual and developmental disabilities (IDD) have unique circumstances setting them apart from the general caregiving population. Such differences include the extensive duration of the caregiving, and health concerns that manifest in the caregiver and individuals with IDD over time. Because of increasing…
Descriptors: Caregivers, Aging (Individuals), Intellectual Disability, Developmental Disabilities
Burke, Meghan M.; Lee, Chung eun; Hall, Sarah A.; Rossetti, Zach – Intellectual and Developmental Disabilities, 2019
Many siblings anticipate fulfilling caregiving roles for their brothers and sisters with intellectual and developmental disabilities (IDD). Given these roles and the importance of supported decision making, it is crucial to understand how individuals with IDD and their siblings make decisions. Using dyadic interviews, we examined the perspectives…
Descriptors: Decision Making, Intellectual Disability, Developmental Disabilities, Siblings
Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Given the increasing lifespans of individuals with intellectual and developmental disabilities (IDD), siblings may fulfil multiple caregiving roles simultaneously for their ageing parents, their offspring, and their brother or sister with IDD. Yet, little is known about compound sibling caregivers. The purpose of this study was to…
Descriptors: Siblings, Intellectual Disability, Developmental Disabilities, Adults
Brady, Anna M.; Burke, Meghan M.; Landon, Trenton; Oertle, Kathleen – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Siblings of adults with intellectual and developmental disabilities (IDD) often support their brothers and sisters through caregiving and guardianship. Methods: In this qualitative study, the knowledge and views of 10 adult siblings were explored. Results & Conclusions: The tripartite impact of limited knowledge of guardianship and…
Descriptors: Siblings, Sibling Relationship, Adults, Intellectual Disability
Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K. – Research and Practice for Persons with Severe Disabilities, 2019
Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand…
Descriptors: Disabilities, Older Adults, Siblings, Caregivers
Burke, Meghan M.; Taylor, Julie Lounds; Urbano, Richard; Hodapp, Robert M. – American Journal on Intellectual and Developmental Disabilities, 2012
With the growing life expectancy for individuals with intellectual and developmental disabilities, siblings will increasingly assume responsibility for the care of their brother or sister with intellectual and developmental disabilities. Using a 163-item survey completed by 757 siblings, the authors identified factors related to future caregiving…
Descriptors: Siblings, Adults, Caregivers, Mental Retardation
