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Direct linkEsther H. Bisschops; J. Clasien de Schipper; Zina Salhi; Petri J.C.M. Embregts; Carlo Schuengel – Journal of Intellectual & Developmental Disability, 2024
Background: Intellectual disability organisations in the Netherlands are seeking to improve clients' quality of care by implementing methods that reduce involuntary care. This study described insights gained from sharing tacit and experiential implementation knowledge in Communities of Practice (CoP). Method: In a participatory research, managers,…
Descriptors: Intellectual Disability, Communities of Practice, Foreign Countries, Caregiver Role
Maaike Hermsen; Rianne Simons; Hennie van Veen; Angela Prudon; Lina Rooijackers; Roy Otten; Renske Koordeman – Journal of Intellectual Disabilities, 2024
Background: Staff-client relationships impact the quality of support and life of people with severe to profound intellectual disabilities and challenging behavior, but are challenging to build due to clients' intense, complex and varying support needs. The present study explores the perspectives of professionals and relatives on what affects these…
Descriptors: Interpersonal Relationship, Severe Intellectual Disability, Behavior Problems, Individual Characteristics
Doodeman, Tanja W. M.; Schuengel, Carlo; Sterkenburg, Paula S. – Journal of Intellectual & Developmental Disability, 2022
Background: People with severe to profound intellectual disabilities have particular needs for others to help them regulate stress. Such support may be hampered by difficulties in detecting and interpreting expressions of stress. This study aimed to describe and identify stress-related behaviours and sensitive, stress-regulating responses to these…
Descriptors: Intellectual Disability, Severity (of Disability), Caregivers, Stress Variables
Thalen, Marloes; van Oorsouw, Wietske M. W. J.; Volkers, Karin M.; Frielink, Noud; Embregts, Petri J. C. M. – International Journal of Developmental Disabilities, 2023
Background: Although the current preventive measures relating to COVID-19 can lead to challenges in the daily work of direct support workers (e.g. keeping 1.5 m distance), it remains vital to uphold the principles of person-centred care when working with older people with intellectual disabilities. The current study explores the extent to which…
Descriptors: COVID-19, Pandemics, Older Adults, Intellectual Disability
Bisschops, Esther H.; de Schipper, J. Clasien; Schippers, Baukje; Embregts, Petri J. C. M.; Schuengel, Carlo – Journal of Intellectual & Developmental Disability, 2022
Background: The multi-disciplinarity of long-term care for people with intellectual disabilities makes organisations seek stability and predictability, complicating implementing innovations. Interventions to implement a method for reducing restrictive measures were analysed through the lens of Normalisation Process Theory to understand the social…
Descriptors: Health Services, Intellectual Disability, Social Influences, Normalization (Disabilities)
de Groot, Rogier; Kaal, Hendrien L.; Ph. Stol, Wouter – Journal of Intellectual & Developmental Disability, 2023
Background: This study reports the findings from a Dutch study, exploring care workers' challenges and approaches in guiding young people with intellectual disabilities in their online lives. Method: Using an inductive research design 33 semi-structured interviews were conducted with care workers. Results: Care workers report challenges that…
Descriptors: Foreign Countries, Youth, Intellectual Disability, Computer Use
Olivier-Pijpers, Vanessa Charissa; Cramm, Jane Murray; Landman, Wouter; Nieboer, Anna Petra – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present authors examined changes made in disability service organizations supporting residents with intellectual disabilities and challenging behaviours, because these changes may influence residents' support and subsequently their challenging behaviours. Method: In this multiple case study, the present authors collected and…
Descriptors: Intellectual Disability, Behavior Problems, Organizational Change, Foreign Countries
Nieuwenhuijse, A. M.; Willems, D. L.; van Goudoever, J. B.; Olsman, E. – International Journal of Developmental Disabilities, 2022
Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Caregiver Attitudes, Caregivers
Zaagsma, Miriam; Koning, Mark H. M.; Volkers, Karin M.; Schippers, Alice P.; Hove, Geert – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Professional support for people with intellectual disabilities is increasingly provided remotely. This study explores what support staff of the Dutch remote support service DigiContact experience as distinctive aspects of their job as a remote support professional. Method: Semi-structured interviews were held with 10 DigiContact…
Descriptors: Foreign Countries, Caregivers, Work Environment, Work Experience
Boeije, Hennie; Leemrijse, Chantal; Zonneveld, Ellen; Schelven, Femke – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Family carers of people with an intellectual disability sometimes need to transfer their caregiving tasks for example because of illness or ageing. We examined carers' experiences with long-term care planning and the impact of the COVID-19 pandemic on their intentions to engage in long-term planning in the Netherlands. Method:…
Descriptors: Caregivers, Family (Sociological Unit), Intellectual Disability, Health Services
Nijs, S.; Taminiau, E. F.; Frielink, N.; Embregts, P. J. C. M. – International Journal of Developmental Disabilities, 2022
Introduction: People with an intellectual disability (ID) are at risk of developing challenging behavior. Although previous research provided important insights into how to support people with an ID and challenging behavior, it remains unclear what various stakeholders consider to be the most essential aspects to further improve their support.…
Descriptors: Intellectual Disability, Behavior Problems, Concept Mapping, Caregivers
Zonneveld, Ellen; van Schelven, Femke; Boeije, Hennie – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The COVID-19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. Method: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105)…
Descriptors: COVID-19, Quality of Life, Pandemics, Intellectual Disability
Grootscholten, Inge A. C.; van Wijngaarden, Bob; Kan, Cornelis C. – Journal of Autism and Developmental Disorders, 2018
Primary caregivers experience consequences from being in close contact to a person with autism spectrum disorder (ASD). This study used the Involvement Evaluation Questionnaire to explore the level of consequences of 104 caregivers involved with adults with High Functioning ASD (HF-ASD) and compared these with the consequences reported by…
Descriptors: Autism, Pervasive Developmental Disorders, Patients, Schizophrenia
Kruithof, Kasper; IJzerman, Lisa; Nieuwenhuijse, Appolonia; Huisman, Sylvia; Schippers, Alice; Willems, Dick; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2021
Background: Since the life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents. Method: To explore how parents and siblings of persons with PIMD view siblings' role regarding future care/support for their family member, we interviewed eight…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Siblings, Role
Tournier, Tess; Hendriks, Alexander H. C.; Jahoda, Andrew; Hastings, Richard P.; Giesbers, Sanne A. H.; Embregts, Petri J. C. M. – Journal of Intellectual & Developmental Disability, 2022
Background: The Family Network Method -- Intellectual Disability (FNM-ID) was used to compare perspectives of people with mild intellectual disability and their support workers on family networks of people with intellectual disability. Method: 138 participants with mild intellectual disability and support workers were interviewed, using the…
Descriptors: Mild Intellectual Disability, Networks, Attitudes, Behavior Problems
