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Direct linkHelen K. Røstad-Tollefsen; Benedicte Hagen Venås; Svein O. Kolset; Kjetil Retterstøl; Hanne Hennig Havdal; Marianne Nordstrøm – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff working in municipal care homes with adults with intellectual disabilities impact their diet significantly. Aim: To explore how external factors influence staff's motivation and performance of nutritional work with these residents. Method: Semi-structured qualitative interviews with 11 staff using systematic text condensation for…
Descriptors: Adults, Intellectual Disability, Residential Institutions, Residential Care
Kelly, Kathyan; Margaret, Haigh; McCarron, Mary; McCallion, Philip; Burke, Eilish; Wormald, Andrew David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Death
Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Peter Baker; Josephine Chishty-Collins; Nick Gore – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.…
Descriptors: Adults, Intellectual Disability, Employees, Caregivers
Lauren T. Ptomey; Kelli Barton; Emma Swinford; Amy Bodde; Amanda George; Anna M. Gorczyca; C. Michelle Niedens; Susan C. Sprague; Amy Yeager; Brian Helsel; Linda Teri; Eric D. Vidoni; Jaime Perales-Puchalt – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The Reducing Disability in Alzheimer's Disease in Kansas City (RDAD-KC) intervention has been shown to improve the health of individuals with dementia and caregiver dyads. This manuscript reports the results of implementing the RDAD among individuals with intellectual disabilities and caregiver dyads. Methods: Nine community agencies…
Descriptors: Alzheimers Disease, Intervention, Health Promotion, Caregivers
Sumithra Murthy; Sarah Parker Harris; Kelly Hsieh – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the…
Descriptors: Foreign Countries, Intellectual Disability, Developmental Disabilities, Caregivers
Schaap, Feija D.; Dijkstra, Geke J.; Reijneveld, Sijmen A.; Finnema, Evelyn J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The ageing of people with intellectual disabilities, with associated morbidity like dementia, calls for new types of care. Person-centred methods may support care staff in providing this, an example being Dementia Care Mapping (DCM). DCM has been shown to be feasible in ID-care. We examined the experiences of ID-professionals in using…
Descriptors: Aging (Individuals), Older Adults, Intellectual Disability, Dementia
Marian E. J. Breuer; Esther J. Bakker-van Gijssel; Tim Pelle; Jenneken Naaldenberg; Geraline L. Leusink – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and…
Descriptors: Intellectual Disability, Specialization, Caregivers, Physician Patient Relationship
Hedayioglu, Julie; Marsden, Sue; Sackree, Amy; Oliver, David – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured…
Descriptors: Caregivers, Residential Care, Group Homes, Intellectual Disability
McKenzie, Karen; Armitage, Bethan; Murray, George; James, Ian – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Therapeutic untruths (TU) are used in dementia services to de-escalate distressing situations. The present authors explored the use of TU by care staff supporting people with an intellectual disability who displayed behaviours that challenged. Method: Data were collected from 126 staff (female = 72.2%; mean age = 41.9 years, SD = 10.7)…
Descriptors: Stress Management, Dementia, Intellectual Disability, Behavior Problems
McCarthy, Michelle; Clawson, Rachael; Patterson, Anne; Fyson, Rachel; Khan, Luftha – Journal of Applied Research in Intellectual Disabilities, 2021
Background: People with intellectual disabilities are at increased risk of forced marriage compared to those without intellectual disabilities. In the UK, this risk is particularly, though not exclusively, associated with South Asian communities and is linked to the desire to secure long-term care. Method: Focus groups and semi-structured…
Descriptors: Marriage, Learning Disabilities, Foreign Countries, Ethnicity
Andrea Almas; Rosemary Lysaght; Susan Farrell; Lorrie Heffernan – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental…
Descriptors: Intellectual Disability, Caregivers, Health Services, Comorbidity
Chicas, Vanessa E.; Steinway, Caren; Chen, Jack; Schwartz, Matthew C.; Wright, Charmaine; Cornacchia, Michelle; Davis, Thomas W.; Berens, John C.; Riddle, Ilka; Woodward, Jason F.; Jan, Sophia – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Long Range Planning
J. Jordan; M. Larkin; E. Tilley; J. Vseteckova; S. Ryan; L. Wallace – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts. Method: A rapid…
Descriptors: Foreign Countries, Literature Reviews, Caregivers, Older Adults
Min Ah Kim; Jaehee Yi; Shinyeong Hwang; Jimin Sung; Seong Young Lee; Heejin Kim – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study sought a holistic understanding of lived experiences of individuals with a sibling who has intellectual and developmental disabilities using photovoice. Methods: Seven adult female siblings of individuals with intellectual and developmental disabilities in South Korea engaged in six weekly photovoice sessions, including an…
Descriptors: Foreign Countries, Females, Siblings, Sibling Relationship
