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Hannah Singer; Elaine B. Clarke; Hillary K. Schiltz; Catherine Lord – American Journal on Intellectual and Developmental Disabilities, 2025
This 10-year study followed 134 caregivers of young adults with autism and intellectual disability, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower…
Descriptors: Caregivers, Coping, Developmental Disabilities, Young Adults
Shayl F. Griffith; Daniel M. Bagner; Katie C. Hart – Child Development Perspectives, 2024
The sharp rise over the past decade in young children's access to various forms of screen media (e.g., smartphones, tablets, TVs) has posed new and significant challenges to caregivers in managing children's use of this type of media. For caregivers of young children with externalizing behavior problems, managing children's time with screen media…
Descriptors: Health Promotion, Health Behavior, Visual Aids, Children
Jessica Hughes; Ruth Roberts; Joanne Tarver; Cheryl Warters-Louth; Betty Zhang; Emma Southward; Rachel Shaw; Georgina Edwards; Jane Waite; Effie Pearson – Autism: The International Journal of Research and Practice, 2024
Autistic individuals with intellectual disability are at greater risk of experiencing anxiety than their non-autistic peers without intellectual disability. Anxiety in this group may present as behaviour that challenges, often leading families to reach out to healthcare or support services. However, many families experience difficulties accessing…
Descriptors: Autism Spectrum Disorders, Caregivers, Intellectual Disability, Access to Health Care
Lauren T. Ptomey; Kelli Barton; Emma Swinford; Amy Bodde; Amanda George; Anna M. Gorczyca; C. Michelle Niedens; Susan C. Sprague; Amy Yeager; Brian Helsel; Linda Teri; Eric D. Vidoni; Jaime Perales-Puchalt – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The Reducing Disability in Alzheimer's Disease in Kansas City (RDAD-KC) intervention has been shown to improve the health of individuals with dementia and caregiver dyads. This manuscript reports the results of implementing the RDAD among individuals with intellectual disabilities and caregiver dyads. Methods: Nine community agencies…
Descriptors: Alzheimers Disease, Intervention, Health Promotion, Caregivers
Maaike Hermsen; Rianne Simons; Hennie van Veen; Angela Prudon; Lina Rooijackers; Roy Otten; Renske Koordeman – Journal of Intellectual Disabilities, 2024
Background: Staff-client relationships impact the quality of support and life of people with severe to profound intellectual disabilities and challenging behavior, but are challenging to build due to clients' intense, complex and varying support needs. The present study explores the perspectives of professionals and relatives on what affects these…
Descriptors: Interpersonal Relationship, Severe Intellectual Disability, Behavior Problems, Individual Characteristics
Sheri Kingsdorf; Karel Pancocha; Jasmina Troshanska; Teuta Ramadani Rasimi – International Journal of Developmental Disabilities, 2024
Effective practices for supporting families with autistic children ensure a match between their needs and the expectations and competencies of the clinician. Applied behavior analysis (ABA) services are a common provision for serving autistic individuals. However, in regions where ABA is in its infancy, like the Czech Republic and North Macedonia,…
Descriptors: Foreign Countries, Caregivers, Needs, Children
McKenzie, Karen; Armitage, Bethan; Murray, George; James, Ian – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Therapeutic untruths (TU) are used in dementia services to de-escalate distressing situations. The present authors explored the use of TU by care staff supporting people with an intellectual disability who displayed behaviours that challenged. Method: Data were collected from 126 staff (female = 72.2%; mean age = 41.9 years, SD = 10.7)…
Descriptors: Stress Management, Dementia, Intellectual Disability, Behavior Problems
Andrea Almas; Rosemary Lysaght; Susan Farrell; Lorrie Heffernan – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental…
Descriptors: Intellectual Disability, Caregivers, Health Services, Comorbidity
Kathleen Simcoe; J. Alacia Stainbrook; Kate T. Chazin; Elaina Schnelle; Liliana Wagner; Madison Hooper; A. Pablo Juárez; Zachary Warren – Autism: The International Journal of Research and Practice, 2025
Despite the clear efficacy and appeal of naturalistic developmental behavioral interventions for families of young children, they are often difficult for families to access due to the limited availability of trained service providers. In recent years, telehealth has emerged as an effective tool for overcoming issues related to access, especially…
Descriptors: Coaching (Performance), Early Intervention, Telecommunications, Family Needs
J. Jordan; M. Larkin; E. Tilley; J. Vseteckova; S. Ryan; L. Wallace – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts. Method: A rapid…
Descriptors: Foreign Countries, Literature Reviews, Caregivers, Older Adults
Cerena Obra – ProQuest LLC, 2024
There is limited evidence on the imperative role that caregivers play in social-emotional learning development for effective social-emotional learning program implementation despite their crucial influence on childhood development. This doctoral project explored the effects of parent education for two school-based, social-emotional learning…
Descriptors: Parent Education, Social Emotional Learning, Self Efficacy, Behavior Problems
Olivier-Pijpers, Vanessa Charissa; Cramm, Jane Murray; Landman, Wouter; Nieboer, Anna Petra – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present authors examined changes made in disability service organizations supporting residents with intellectual disabilities and challenging behaviours, because these changes may influence residents' support and subsequently their challenging behaviours. Method: In this multiple case study, the present authors collected and…
Descriptors: Intellectual Disability, Behavior Problems, Organizational Change, Foreign Countries
Kouroupa, Athanasia; Hassiotis, Angela; Hamza, Leila; Courtenay, Ken; Hall, Ian; Langdon, Peter E.; Taggart, Laurence; Crossey, Vicky; Lloyd-Evans, Brynmor; Morant, Nicola – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adults with intellectual disabilities often display behaviour that challenges that is a result of biological differences, psychological challenges, and lack of appropriate social support. Intensive Support Teams (IST) are recommended to support the care needs of this group and avoid hospitalisation. However, little attention has been…
Descriptors: Adults, Intellectual Disability, Behavior Problems, Foreign Countries
Jessica D. Slaton; Morgan Davis; David A. DePetris; Katherine J. Raftery; Salvatore Daniele; Christina M. Caruso – Journal of Applied Behavior Analysis, 2024
There are several considerations to address when conducting functional communication training for challenging behavior in a school setting, such as the need for schedule thinning and maintenance across staff and the need to establish a variety of appropriate classroom skills. There are several strategies for conducting schedule thinning following…
Descriptors: Training, Behavior Problems, Children, Autism Spectrum Disorders
Neely, Leslie C.; Carnett, Amarie; Hansen, Sarah; Courtney, Meghan; Cantrell, Katherine – Perspectives of the ASHA Special Interest Groups, 2022
Purpose: Applied behavior analysis (ABA) interventions are considered an evidence-based practice for individuals with autism spectrum disorder. With the recent COVID-19 pandemic, behavior analytic professionals quickly pivoted ABA therapy to the telehealth modality to ensure continuity of services. In particular, this modality has been reported to…
Descriptors: Intervention, Behavior Modification, Caregivers, Autism