The sharp rise over the past decade in young children's access to various forms of screen media (e.g., smartphones, tablets, TVs) has posed new and significant challenges to caregivers in managing children's use of this type of media. For caregivers of young children with externalizing behavior problems, managing children's time with screen media…

This study investigated health-related QoL (HRQoL) and care-related quality of life (CarerQol) in clinically referred children with an autism spectrum disorder (ASD), and their primary and secondary caregivers. The EuroQol five-dimensional (EQ-5D) and the CarerQol questionnaires were used to respectively measure health-related QoL and care-related…

Background: As adults with intellectual and developmental disabilities (IDD) have longer lives, parents may remain caregivers into old age. In addition, it is unknown who will fulfil caregiving roles after parents are no longer able to be caregivers. In the current study, we explored the nature (e.g. number of hours of caregiving) and correlates…

To better understand the impact of children's autism spectrum disorder (ASD) severity on families, we evaluated pathways through which ASD severity affected child sleep quality, caregiver strain, and caregiver sleep quality. In a cross-sectional analysis through the U.S.-wide Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort.…

This dissertation measures and describes the factors that impact doctoral student persistence. Using a mixed methods cases study design, I analyzed institutional student record data, survey data on caregiving responsibilities, and data from semi-structured interviews with PhD students at a STEM-focused, public research university in the American…

The aim of this study was to investigate the oral health status and quality of life (QOL) of the parental caregivers of individuals with Down syndrome (DS), and to evaluate whether there is an association between these variables. The sample of this cross-sectional study was composed by parental caregivers of children with DS (CCDS) and parental…

Introduction: The work environment of professionals who work directly with people with intellectual disabilities plays a key role in people's lives, since they are directly or indirectly responsible for improving the living conditions of those who receive these services. Specifically, these workers' risk of suffering burnout has an important…

Caregiver strain is directly impacted by youth symptom severity and is a robust predictor of youth mental health service utilization. A closer examination of caregiver strain may provide important insights into understanding mental health disparities as they affect Latino families. This study examined the impact of youth problem type on specific…

Background: This study aimed to examine the associations between individual staff and staff team characteristics and quality of life of individuals with intellectual disabilities and challenging behaviours. Method: With multilevel analyses, we examined educational level, experience, attitudes and behaviours of 240 staff members, in relation to…

Elevated caregiver strain is common and linked to poor health in parents of children with autism. Yet, little research has examined caregiver strain longitudinally and in geographically diverse samples of parents whose children have autism. This study aimed to (1) examine change in caregiver strain and (2) determine correlates of improved…

Background: The COVID-19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. Method: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105)…

This study tested international similarities and differences in scores on a scale comprising 12 items identified by international mental health experts as being very consistent with the "Diagnostic and Statistical Manual of Mental Disorders" (5th ed.) category of autism spectrum disorder. Participants were 19,850 preschoolers in 24…

Background: This study aimed to develop a self-report measure of paid caregivers' empathy towards people with intellectual disabilities. Materials and Methods: Following questionnaire development, 194 staff working in services for people with intellectual disabilities completed self-report questionnaires, including the new empathy measure. The…

The relationship between turn taking (i.e., back-and-forth preverbal communicative exchanges) and joint attention has not been studied in interactions between children with autism and caregivers. In joint attention, a form of preverbal social communication, young children socially share attention with a partner about objects, a competency that is…

This study aims to examine the (1) prevalence of adverse childhood experiences (ACEs) among children in kinship care; (2) relationships between the number and type of ACEs and children's internalizing and externalizing problems; and (3) moderating role of kinship caregivers' mental health on the relationships between ACEs and children's…