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Helen K. Røstad-Tollefsen; Benedicte Hagen Venås; Svein O. Kolset; Kjetil Retterstøl; Hanne Hennig Havdal; Marianne Nordstrøm – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff working in municipal care homes with adults with intellectual disabilities impact their diet significantly. Aim: To explore how external factors influence staff's motivation and performance of nutritional work with these residents. Method: Semi-structured qualitative interviews with 11 staff using systematic text condensation for…
Descriptors: Adults, Intellectual Disability, Residential Institutions, Residential Care
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Hannah Singer; Elaine B. Clarke; Hillary K. Schiltz; Catherine Lord – American Journal on Intellectual and Developmental Disabilities, 2025
This 10-year study followed 134 caregivers of young adults with autism and intellectual disability, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower…
Descriptors: Caregivers, Coping, Developmental Disabilities, Young Adults
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Ran Neuman – British Journal of Learning Disabilities, 2024
Background: Despite humanistic declarations regarding the rights of people with intellectual disability to live a full, meaningful life, in practice, resulting from dilemmas experienced by direct support provides, support is often limited to a focus on functional independence. The aim of this research was to define the theoretical principles by…
Descriptors: Intellectual Disability, Humanization, Caregivers, Social Support Groups
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Kelly, Kathyan; Margaret, Haigh; McCarron, Mary; McCallion, Philip; Burke, Eilish; Wormald, Andrew David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Death
Hope Huling – ProQuest LLC, 2023
Society often holds strongly biased and stigmatized opinions when it comes to what is deemed appropriate or inappropriate for the sexual behavior of individuals with intellectual disabilities (ID) or developmental disabilities (DD). This is typically due to the beliefs that the ID/DD population are either only capable of having child-like…
Descriptors: Sex Education, Sexuality, Adults, Caregivers
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Heather H. Kelley; Ty B. Aller; Matthew Wappett – Journal of Mental Health Research in Intellectual Disabilities, 2024
Background: Direct Support Professionals (DSP) work closely with individuals with intellectual and developmental disabilities (I/DD) and can play an important role in helping these individuals get treatment when they are also experiencing mental health concerns (MHC). Methods: We employed a systematic review search techniques to identify 15…
Descriptors: Intellectual Disability, Developmental Disabilities, Mental Health, Staff Development
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Esther H. Bisschops; J. Clasien de Schipper; Zina Salhi; Petri J.C.M. Embregts; Carlo Schuengel – Journal of Intellectual & Developmental Disability, 2024
Background: Intellectual disability organisations in the Netherlands are seeking to improve clients' quality of care by implementing methods that reduce involuntary care. This study described insights gained from sharing tacit and experiential implementation knowledge in Communities of Practice (CoP). Method: In a participatory research, managers,…
Descriptors: Intellectual Disability, Communities of Practice, Foreign Countries, Caregiver Role
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Peter Baker; Josephine Chishty-Collins; Nick Gore – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.…
Descriptors: Adults, Intellectual Disability, Employees, Caregivers
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Jessica Hughes; Ruth Roberts; Joanne Tarver; Cheryl Warters-Louth; Betty Zhang; Emma Southward; Rachel Shaw; Georgina Edwards; Jane Waite; Effie Pearson – Autism: The International Journal of Research and Practice, 2024
Autistic individuals with intellectual disability are at greater risk of experiencing anxiety than their non-autistic peers without intellectual disability. Anxiety in this group may present as behaviour that challenges, often leading families to reach out to healthcare or support services. However, many families experience difficulties accessing…
Descriptors: Autism Spectrum Disorders, Caregivers, Intellectual Disability, Access to Health Care
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Lauren T. Ptomey; Kelli Barton; Emma Swinford; Amy Bodde; Amanda George; Anna M. Gorczyca; C. Michelle Niedens; Susan C. Sprague; Amy Yeager; Brian Helsel; Linda Teri; Eric D. Vidoni; Jaime Perales-Puchalt – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The Reducing Disability in Alzheimer's Disease in Kansas City (RDAD-KC) intervention has been shown to improve the health of individuals with dementia and caregiver dyads. This manuscript reports the results of implementing the RDAD among individuals with intellectual disabilities and caregiver dyads. Methods: Nine community agencies…
Descriptors: Alzheimers Disease, Intervention, Health Promotion, Caregivers
Girtler, Shawn Nicole – ProQuest LLC, 2023
The presence of independent and functional living skills increases autonomy and predicts better outcomes for adults with intellectual and developmental disabilities (IDD). Teaching caregivers to successfully teach functional living skills is an indirect way to positively impact the lives of adults with IDD. Behavior skills training (BST) is an…
Descriptors: Caregivers, Adults, Intellectual Disability, Developmental Disabilities
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Kramer, Jessica M.; Beasley, Joan B.; Caoili, Andrea; Goode, Tawara; Guerrero, Fiorella; Klein, Ann; Grosso, Elizabeth; Kennelly-Smith, Elizabeth – Journal of Mental Health Research in Intellectual Disabilities, 2023
Introduction: Quality services for persons with intellectual and developmental disabilities and mental health needs (IDD-MH) requires timely access to services that are responsive to their needs and preferences. This study explores virtual service delivery from the perspectives of family caregivers of persons IDD-MH during the onset of the…
Descriptors: Caregivers, Family Attitudes, Intellectual Disability, Developmental Disabilities
Tanika Jackson-Richmond – ProQuest LLC, 2024
The COVID-19 pandemic presented unprecedented challenges particularly among group homes for individuals with intellectual and developmental disabilities (IDD) given the close interactions and living arrangements of residents. Thus, the purpose of this project was to determine if an educational intervention focused on COVID-19 and COVID-19…
Descriptors: Group Homes, COVID-19, Pandemics, Intellectual Disability
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Sumithra Murthy; Sarah Parker Harris; Kelly Hsieh – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the…
Descriptors: Foreign Countries, Intellectual Disability, Developmental Disabilities, Caregivers
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Brennan, Damien; D'eath, Maureen; Dunne, Nikki; O'Donovan, Mary-Ann; McCallion, Philip; McCarron, Mary – Journal of Intellectual Disabilities, 2023
This paper explores contemporary Irish social policy for family caregivers with specific focus on the dynamic between the individual, the family and the state in terms of the social contract for care provision for people with intellectual disability. Drawing from Bacchi's analytical framework (Bacchi, 2009), the Irish National Carers' Strategy is…
Descriptors: Public Policy, Caregivers, Intellectual Disability, Family Role
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