Introduction: Young people with intellectual disabilities (ID) are at an increased risk for experiencing mental health issues compared to their peers without disabilities. Further, there are limited resources available to help accurately assess mental health disorders and that are accessible for adolescents with ID. Method: This paper describes…

Communication deficits have a substantial impact on quality of life for individuals with Angelman syndrome (AS) and their families, but limited qualitative work exists to support the necessary content of measures aiming to assess communication for these individuals. Following best practices for concept elicitation studies, we conducted individual…

Background: Historically the voices of people with intellectual disability have been occluded by barriers imposed by research practice. More recently, adaptive research approaches have been proposed to enhance the inclusion of people with intellectual disability in qualitative research. Method: This article presents an adaptive interviewing…

This paper explores the affordances of using video-based research to capture a multiplicity of events, along with multimodal representations when producing data related to adult-child book readings. In doing this we answer two questions: (1) why more than one event is needed when seeking a comprehensive collection of information for the purpose of…

Decades of empirical research has demonstrated that exclusionary discipline is a racialized mechanism through which schools systematically remove Black and brown children from the learning environment. Although development of Functional Behavior Assessments (FBAs) and linked behavior support plans has been identified as a solution to exclusionary…

The purpose of this research is to investigate the relationship between early intervention providers' backgrounds, and their perceptions of caregiver coaching and auditory skill development, to develop professional development programs. An explanatory sequential design was used with participants of varying backgrounds and experience. In the first…

The intersection of mass incarceration and fatherhood is of particular interest to a growing number of scholars, policymakers, and practitioners. In this study, the role of fathers in children's lives before and during imprisonment are investigated from the caregiver perspective. Reliance on caregivers' accounts offers valuable insight into the…

The purpose of this dissertation study was to describe how students who provide care for a person with a disability or chronic illness cope with the demands of both roles. The way students cope with stress has a direct impact on overall health, which has an impact on learning, development, and retention. Student caregivers are considered…

Background: School-centered asthma programs (SAPs) can be an effective intervention to improve asthma control for underserved populations but little is known about how key stakeholders communicate within these programs. Therefore, our aim was to identify key components of effective communication in a SAP. Methods: Primary care providers (PCPs),…

Lesbian, gay, bisexual, and transgender (LGBT) youth and their caregivers often describe coming out as a process that impacts the family unit. Oftentimes, caregivers may experience a range of emotions in response to the youth coming out. Caregivers of LGBT youth who seek counseling may benefit from collaborative treatment that addresses their…

Background: Existing literature indicates that young people in state care have particular sexual health needs that include addressing their social and emotional well-being, yet little has been published as to how these components of sex education are actually delivered by service-providers. Objective: The aim of this study was to analyse the…

Analyzing the self-identities of students with hearing loss and the perceptions of their caregivers/parents assist understanding of and affirming of one another and facilitate students' self-advocacy development. Caregivers/parents must be receptive to how the individual identifies him/herself (Cole & Edelmann, 1991; Jackson, Traub, &…

Background: Restrictive measures may have important physical and psychological consequences on all persons involved. The current study examined how these are perceived by persons with intellectual disabilities and staff. Materials and Methods: Interviews were conducted with eight persons with intellectual disabilities who experienced a restrictive…

This article reports on the results of a pilot study exploring whether and how the meal situations of persons with intellectual disabilities (PWIDs) in need of help and support during meal situations were affected by an eating aid. This article also analyzes how PWIDs and their assistants perceived their experiences of using an eating aid during…

Background: Our aim was to explore previously unknown long-term outcomes of self-directed personal care services for young adults with intellectual disabilities and limitations in activities of daily living. Materials and Methods: The present authors utilized participatory action research and qualitative content analysis in interviewing 11 unpaid…