This 10-year study followed 134 caregivers of young adults with autism and intellectual disability, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower…

Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…

With many teens having to transition from a mainly educational system of support to a set of health and social service systems (Shattuck et al. in Autism Res Treat https://doi.org/10.1155/2014/924182, 2017), there is a critical need to advance research and support services in the area of autism and transition to aid autistic* individuals and their…

Background: The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.…

This paper explores contemporary Irish social policy for family caregivers with specific focus on the dynamic between the individual, the family and the state in terms of the social contract for care provision for people with intellectual disability. Drawing from Bacchi's analytical framework (Bacchi, 2009), the Irish National Carers' Strategy is…

A high prevalence of maltreatment, abuse, neglect and the onset of subsequent trauma has been well-documented among both young people with disability and young people residing in foster and kinship care. However, no uniform policies or guidelines currently exist for the delivery of trauma-informed models of care to build the capacity of foster and…

Student carers have significant responsibilities in addition to their studies. This can result in adverse effects on academic achievement and the student experience. It is unclear how many students at Kingston University and nationally have significant caring responsibilities and what impact this has on their studies and overall wellbeing. This…

Gender disparity persists in the personal caregiving of children and older adults, and in professional caregiving duties, with many workplace policies and cultures favoring the "ideal worker" and presenting significant and continuing barriers to female caregivers' professional success and well-being. The recent pandemic both highlighted…

Given the individual and systemic stress endured by children and families during the COVID-19 pandemic, research examining culturally responsive school experiences and supports to enhance resilience is critical. This study examined the relationship between caregivers' perceptions of COVID-19 impact, mental health distress among children and…

Autistic children and young people experience poorer mental health and well-being compared to their non-autistic peers. Navigating the complex social, academic, procedural and sensory aspects of school may be particularly challenging for autistic young people and contribute to poorer mental well-being. The COVID-19 pandemic caused unprecedented…

Concerned with the ongoing youth mental crisis in the United States, researchers intentionally planned for positive youth development (PYD) practices in nature. Educators, appreciating the critical importance of youth developing relationships and a sense of belonging, may regard this model as a powerful tool to enhance existing programs. Both…

Background: Systematic knowledge about stroke adaptation can be a useful tool to develop evidence-based policies and practices centered on survivors and informal caregivers. Purpose: This scoping review summarizes the body of knowledge about the adaptation processes after stroke. Methods: Based on PRISMA-ScR guidelines, databases were searched, in…

Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…

Sleep problems are prevalent among individuals with Rett syndrome. We aimed to investigate sleep problems in individuals with Rett syndrome and their caregivers. A total of 29 participants diagnosed with Rett syndrome and their respective 29 caregivers were included. The Children Sleep Habits Questionnaire (CSHQ), the Pittsburgh Sleep Quality…

Women comprise most of the professionals in student affairs in higher education in the United States. They are tasked with supporting students and campus communities with complex challenges and needs. Women student affairs leaders simultaneously manage multiple roles and responsibilities, both personal and professional. The work of women student…