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Trends in Prevalence and Characteristics of Post-Neonatal Cerebral Palsy Cases: A European Registry-Based Study
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Germany, Laurence; Ehlinger, Virginie; Klapouszczak, Dana; Delobel, Malika; Hollody, Katalin; Sellier, Elodie; De La Cruz, Javier; Alberge, Corine; Genolini, Christophe; Arnaud, Catherine – Research in Developmental Disabilities: A Multidisciplinary Journal, 2013
The present paper aims to analyze trends over time in prevalence of cerebral palsy of post-neonatal origin, to investigate whether changes are similar according to severity and to describe the disability profile by etiology. Post-neonatal cases, birth years 1976 to 1998, were identified from the Surveillance of Cerebral Palsy in Europe…
Descriptors: Public Health, Children, Foreign Countries, Incidence
Determinants of Inclusive Education of 8-12 Year-Old Children with Cerebral Palsy in 9 European Regions
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Sentenac, Mariane; Ehlinger, Virginie; Michelsen, Susan Ishoy; Marcelli, Marco; Dickinson, Heather Olivia; Arnaud, Catherine – Research in Developmental Disabilities: A Multidisciplinary Journal, 2013
The principle of inclusive education has been increasingly recognised over recent decades and most countries officially support schooling of children with disabilities in mainstream settings. The SPARCLE study offers the opportunity to report on the schooling practices for children with cerebral palsy according to the nature and severity of their…
Descriptors: Disabilities, Inclusion, Foreign Countries, Psychomotor Skills
Measuring the Concept of Impact of Childhood Disability on Parents: Validation of a Multidimensional Measurement in a Cerebral Palsy Population
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Guyard, Audrey; Michelsen, Susan I.; Arnaud, Catherine; Lyons, Alan; Cans, Christine; Fauconnier, Jerome – Research in Developmental Disabilities: A Multidisciplinary Journal, 2012
Living with a child with a disability can affect family life in various domains. Impacts on time, expenses, work, relationships within the family, social relationships and physical and psychological health can be observed. The Family Impact of Childhood Disability (FICD) is a specific instrument designed to assess this situation. Used in a…
Descriptors: Family Attitudes, Family Life, Cerebral Palsy, Disabilities
Predictors of Cerebral Palsy in Very Preterm Infants: The EPIPAGE Prospective Population-Based Cohort Study
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Beaino, Ghada; Khoshnood, Babak; Kaminski, Monique; Pierrat, Veronique; Marret, Stephane; Matis, Jacqueline; Ledesert, Bernard; Thiriez, Gerard; Fresson, Jeanne; Roze, Jean-Christophe; Zupan-Simunek, Veronique; Arnaud, Catherine; Burguet, Antoine; Larroque, Beatrice; Breart, Gerard; Ancel, Pierre-Yves – Developmental Medicine & Child Neurology, 2010
Aim: The aim of this study was to assess the independent role of cerebral lesions on ultrasound scan, and several other neonatal and obstetric factors, as potential predictors of cerebral palsy (CP) in a large population-based cohort of very preterm infants. Method: As part of EPIPAGE, a population-based prospective cohort study, perinatal data…
Descriptors: Incidence, Cerebral Palsy, Pregnancy, Premature Infants
Parent and Professional Reports of the Quality of Life of Children with Cerebral Palsy and Associated Intellectual Impairment
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White-Koning, Melanie; Grandjean, Helene; Colver, Allan; Arnaud, Catherine – Developmental Medicine & Child Neurology, 2008
To examine parent-professional agreement in proxy-reports of child quality of life (QoL) and the factors associated with low child QoL in children with cerebral palsy (CP) and associated intellectual impairment. Professional (teacher, therapist, or residential carer) and parent reports of QoL for 204 children (127 males, 77 females, mean age 10y…
Descriptors: Stress Variables, Quality of Life, Cerebral Palsy, Mental Retardation
Psychological Problems in Children with Cerebral Palsy: A Cross-Sectional European Study
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Parkes, Jackie; White-Koning, Melanie; Dickinson, Heather O.; Thyen, Ute; Arnaud, Catherine; Beckung, Eva; Fauconnier, Jerome; Marcelli, Marco; McManus, Vicki; Michelsen, Susan I.; Parkinson, Kathryn; Colver, Allan – Journal of Child Psychology and Psychiatry, 2008
Objectives: To describe psychological symptoms in 8-12-year-old children with cerebral palsy; to investigate predictors of these symptoms and their impact on the child and family. Design: A cross-sectional multi-centre survey. Participants: Eight hundred and eighteen children with cerebral palsy, aged 8-12 years, identified from population-based…
Descriptors: Severity (of Disability), Siblings, Severe Disabilities, Family Characteristics