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Louise Rixon; Richard P. Hastings; Hanna Kovshoff – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The impact of having a disabled brother or sister on siblings' psychological well-being and sibling relationships has been the subject of several research studies. However, research which focuses on the relationship between siblings and their autistic brother or sister with an intellectual disability and complex care needs is rare. We…
Descriptors: Autism Spectrum Disorders, Sibling Relationship, Children, Early Adolescents
Lauren A. Cameron; Bruce J. Tonge; Patricia Howlin; Stewart L. Einfeld; Roger J. Stancliffe; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Few studies have explored community participation for autistic adults, with or without intellectual disability. This study aims to investigate how autistic adults participate in the community, and the childhood and adulthood factors that predict community participation in adulthood. Method: Eighty-four autistic adults (mean age 34…
Descriptors: Adults, Autism Spectrum Disorders, Intellectual Disability, Predictor Variables
Ljungberg, Malin; Schön, Ulla-Karin – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The autistic population is growing and ageing and this also applies to the parents. Despite this, research about parental experiences is still relatively scarce. Even though studies show, compared with adults with other disabilities, parents of autistic adolescents and adults report a decrease in well-being and that caregiving is often…
Descriptors: Autism Spectrum Disorders, Parents, Aging (Individuals), Well Being
Shahad Alarifi; Louise Denne; Nouf Alatifi; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Arabs with intellectual disabilities and/or autism may exhibit challenging behaviour that affects them and their caregivers. Early, appropriate intervention may reduce these effects. This review synthesised and critically appraised challenging behaviour intervention research for this population. Methods: All published empirical…
Descriptors: Arabs, Intellectual Disability, Autism Spectrum Disorders, Behavior Problems
Clark, Trevor; Jung, Jae Yup; Roberts, Jacqueline; Robinson, Ainslie; Howlin, Patricia – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Although autism is commonly described in terms of deficits, many autistic individuals have been found to demonstrate exceptional skills. The shift to a strengths-based approach in the field of autism necessitates increased understanding of these skills. Aims: This study examined (1) rates of exceptional skills in autistic school-age…
Descriptors: Autism Spectrum Disorders, Gifted, Ability, Severity (of Disability)
Daniel Sutherland; Samantha Flynn; Joanna Griffin; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8-13. We investigated experiences of Positive Family…
Descriptors: Developmental Disabilities, Children, Early Adolescents, Family Environment
Griffin, Joanna; Gore, Nick – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders
Marleen F. Westerveld; Stephanie A. Malone; Sally Clendon; Rachael Bowen; Georgia Hayley; Jessica Paynter – Journal of Applied Research in Intellectual Disabilities, 2024
Background: As a group, autistic children with high support needs (with adaptive functioning in the range of an intellectual disability) are at risk of significant literacy difficulties. We investigated the parent-reported home literacy environment of this group of children. Method: Sixty-two parents of autistic children (4.5 to 18.25 years)…
Descriptors: Family Environment, Literacy, Autism Spectrum Disorders, Children
Nicholls, Gemma; Bailey, Tom; Grindle, Corinna F.; Hastings, Richard P. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Longitudinal research is needed to strengthen evidence for risk factors for challenging behaviour in children with intellectual disabilities and to understand patterns of change over time. Methods: Data on challenging behaviour were collected for 225 students in one school over four annual time points and a range of potential risk…
Descriptors: Children, Young Adults, Youth, Intellectual Disability
Rooney, James; Hodge, Rebecca; Smith, Jade; Vanstone, Kelly; Laugharne, Richard; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Constipation is common in children with intellectual disabilities and/or autism, but poorly researched. This study looks to understand parental knowledge, attitudes and management practices towards constipation in children with intellectual disabilities and/or autism. Methods: A cross-sectional online survey developed with patient…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders