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Direct linkKate Oulton; Faith Gibson; Charlotte Kenten; Jessica Russell; Jo Wray – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is a lack of evidence to inform the provision of safe hospital care and treatment to children with intellectual disabilities. Methods: Interviews were conducted with 52 parents/carers of 42 children with intellectual disabilities and 98 hospital staff about the care of children with intellectual disabilities during in-patient…
Descriptors: Children, Intellectual Disability, Child Safety, Security (Psychology)
Ong, Natalie; Long, Janet C.; Weise, Janelle; Walton, Merrilyn – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Children with intellectual disability are vulnerable to adverse events in hospital due to limited staff skills and system safeguards. Method: A systematic review of the literature explored healthcare staff (HCS) experiences in providing care for children and young persons with intellectual disability in hospital using thematic…
Descriptors: Children, Intellectual Disability, Hospitals, Safety
Man, Joyce; Kangas, Maria – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Carer mental health literacy and help seeking are areas that are not well researched in the intellectual disability field. This study aimed to explore the above including service utilization experiences of Australian parents with an offspring with an intellectual disability and a comorbid psychiatric disorder. Method: Forty-one parents…
Descriptors: Caregivers, Mental Health, Knowledge Level, Help Seeking
Oulton, K.; Sell, D.; Gibson, F. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: The need to review health service provision for children and young people (CYP) with disabilities and their families in the United Kingdom has been expressed in multiple reports--the most consistent message being that services need to be tailored to meet their individual needs. Our aim was to understand the hospital-related needs and…
Descriptors: Intellectual Disability, Hospitals, Health Services, Children
Duc, Jacqueline K.; Herbert, Anthony Robert; Heussler, Helen S. – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Paediatric palliative care is a nuanced area of practice with additional complexities in the context of intellectual disability. There is currently minimal research to guide clinicians working in this challenging area of care. Method: This study describes the complex care of children with life-limiting conditions and intellectual…
Descriptors: Child Health, Children, Intellectual Disability, Chronic Illness
Brown, Hilary K.; Ouellette-Kuntz, Helene; Hunter, Duncan; Kelley, Elizabeth; Cobigo, Virginie – Journal of Applied Research in Intellectual Disabilities, 2012
Background: To aid decision making regarding the allocation of limited resources, information is needed on the perceived unmet needs of parents of school-aged children with an autism spectrum disorder. Materials and Methods: A cross-sectional survey was conducted of 101 Canadian families of school-aged children with an autism spectrum disorder.…
Descriptors: Children, Autism, Foreign Countries, Resource Allocation
Nachshen, Jennifer S.; Martin-Storey, Alexa; Campisi, Lisa; Stack, Dale; Schwartzman, Alex; Serbin, Lisa – Journal of Applied Research in Intellectual Disabilities, 2009
Background: Previous research on psychiatric and health disparities according to level of cognitive functioning has focused on adults within an American healthcare context. The current study compares children with and without cognitive and developmental delays in Quebec, Canada, using physician billing data from a longitudinal study of low-income,…
Descriptors: Foreign Countries, Developmental Delays, Public Health, Public Policy
Dahl, Norm; Tervo, Raymond; Symons, Frank J. – Journal of Applied Research in Intellectual Disabilities, 2007
Background: Although treatment acceptability scales in intellectual and developmental disabilities research have been used in large- and small-scale applications, large-scale application has been limited to analogue (i.e. contrived) investigations. This study extended the application of treatment acceptability by assessing a large sample of care…
Descriptors: Medical Services, Mental Retardation, Developmental Disabilities, Cerebral Palsy
