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Direct linkSuze van Wijngaarden; Marja W. Hodes; Leo Cardinaal; Mark Koning; Alice Schippers – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families of parents with intellectual disabilities still face discrimination, stigma and inadequate support, placing them in vulnerable positions. Social assistive robotics offers promising support. This study investigates the possible impact of social assistive robotics on family quality of life (FQoL). Method: An inclusive, iterative…
Descriptors: Parents with Disabilities, Intellectual Disability, Attitudes toward Disabilities, Social Bias
Kim, Jinhee; Kim, Hyunlye; Park, Seojin; Yoo, Jaeyong; Gelegjamts, Delgersuren – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Intellectual disabilities are characterized by constant and complex needs for care that place a heavy burden on the families of affected individuals and affect their overall quality of life. We evaluated the mediating effects of family functioning on the relationship between care burden and the family quality of life of caregivers of…
Descriptors: Family Relationship, Family Life, Quality of Life, Child Caregivers
Dikow, Nicola; Moog, Ute; Karch, Stephanie; Sander, Anja; Kilian, Samuel; Blank, Rainer; Reuner, Gitta – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Caring for a child with intellectual disability (ID) has been associated with increased social and psychological burdens. Diagnostic and prognostic uncertainty may enhance emotional stress in families. Method: The present authors assessed the motivations, expectations, mental health, physical health and the quality of life of 194…
Descriptors: Parent Attitudes, Expectation, Clinical Diagnosis, Genetics
Bowring, Darren L.; Totsika, Vasiliki; Hastings, Richard P.; Toogood, Sandy – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Previous evaluations of community PBS teams have not investigated whether behaviour change is both statistically reliable and clinically significant. Few previous studies have reported quality of life (QoL) and social validity outcomes. Method: The present authors collected data on 85 people referred to a specialist PBS team. The…
Descriptors: Developmental Disabilities, Behavior Change, Behavior Problems, Positive Behavior Supports
Duc, Jacqueline K.; Herbert, Anthony Robert; Heussler, Helen S. – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Paediatric palliative care is a nuanced area of practice with additional complexities in the context of intellectual disability. There is currently minimal research to guide clinicians working in this challenging area of care. Method: This study describes the complex care of children with life-limiting conditions and intellectual…
Descriptors: Child Health, Children, Intellectual Disability, Chronic Illness
Yang, Xue; Byrne, Victoria; Chiu, Marcus Y. L. – Journal of Applied Research in Intellectual Disabilities, 2016
Background: By utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued. Methods: Data were collected through the qualitative methods of interviews and observations among a…
Descriptors: Foreign Countries, Grounded Theory, Child Rearing, Family Role
