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Peer reviewed
Direct linkPriscilla Burnham Riosa; Amanpreet Randhawa; Barbara Muskat – Journal of Autism and Developmental Disorders, 2024
The hospital setting may be especially difficult for pediatric patients on the autism spectrum and their families compared to those not on the spectrum. Child life specialists are healthcare professionals specifically trained to support parents and their children and help prepare them for hospital procedures. Because of this specialized skill set,…
Descriptors: Specialists, Autism Spectrum Disorders, Hospitals, Hospitalized Children
Diana Fields; Kathryn Asbury – Journal of Autism and Developmental Disorders, 2024
This study explores how capable young children are of thinking about a potential future that uses DNA screening to assess an individual's likelihood of experiencing learning or behaviour difficulties. Puppets and a scenario-based approach were used to ask children aged 4-10 (n = 165) whether they thought DNA screening might be helpful or harmful.…
Descriptors: Autism Spectrum Disorders, Futures (of Society), Genetics, Behavior Problems
Lauren E. Mazur; Katelyn M. Even; Conrad Krawiec – Journal of Autism and Developmental Disorders, 2025
Children with neurodevelopmental disorders are at risk for burn injury, but the clinical outcomes, particularly mortality, are unknown in this patient population in the United States (U.S.). The main objectives of this study are to evaluate (1) subject characteristics; (2) burn injury type; (3) clinical care provided; and (4) mortality in children…
Descriptors: Children, Neurodevelopmental Disorders, At Risk Persons, Individual Characteristics
Lee, Shih-Chieh; Fu, I-Ning; Liu, Meng-Ru; Yu, Tzu-Ying; Chen, Kuan-Lin – Journal of Autism and Developmental Disorders, 2023
The Theory of Mind Inventory-2 (ToMI-2) is a promising measure for assessing theory of mind (ToM) and social-related functions. However, limited evidence on its factorial validity hampers score interpretation. To examine the factorial validity, confirmatory factor analysis for two currently-available structures was performed in 420 typically…
Descriptors: Measures (Individuals), Theory of Mind, Validity, Factor Analysis
Anjalee W. Galion; Justin G. Farmer; Heidi V. Connolly; Virginia D. Allhusen; Amanda Bennett; Daniel L. Coury; Janet Lam; Ann M. Neumeyer; Kristin Sohl; Manisha Witmans; Beth A. Malow; Autism Treatment Network/Autism Intervention Research Network on Physical Health (ATN/AIR-P) Sleep Committee, Contributor – Journal of Autism and Developmental Disorders, 2024
Children with autism spectrum disorder (ASD) report high rates of sleep problems. In 2012, the Autism Treatment Network/Autism Intervention Research Network on Physical Health (ATN/AIR-P) Sleep Committee developed a pathway to address these concerns. Since its publication, ATN/AIR-P clinicians and parents have identified night wakings as a…
Descriptors: Children, Autism Spectrum Disorders, Sleep, Intervention
Robert Klitzman; Ekaterina Bezborodko; Wendy K. Chung; Paul S. Appelbaum – Journal of Autism and Developmental Disorders, 2025
To assess whether genetic test results identifying the cause of a child's autism, when accompanied by other neurodevelopmental disorders (NDD), including intellectual disability, alter how parents perceive and treat their child. 28 parents of 22 individuals with autism (mean age: 15 years), usually with other NDDs, were interviewed after receiving…
Descriptors: Genetic Disorders, Screening Tests, Autism Spectrum Disorders, Neurodevelopmental Disorders
Assessing Child Life Specialists' Management of Challenging Behaviors in Autistic Pediatric Patients
Kaitlyn Schenk; Amy A. Weimer; Katherine Rice Warnell – Journal of Autism and Developmental Disorders, 2025
Given that autistic children are hospitalized at higher rates than neurotypical peers, it is important to understand the autism-specific preparedness of healthcare providers. Certified Child Life Specialists (CCLSs) play a crucial role in pediatric hospitalizations by providing socioemotional support and coping strategies. The present study…
Descriptors: Autism Spectrum Disorders, Children, Pediatrics, Patients
Moire Stevenson; Emmanuela Tedone – Journal of Autism and Developmental Disorders, 2025
There is a higher incidence of diagnosed Autism Spectrum Disorder (ASD) in children with visual impairment and blindness (VIB) than in typically sighted children. However, we currently lack appropriate assessment measures to fully understand the neurodevelopment of children with VIB. Numerous factors, such as common characteristics between…
Descriptors: Evaluation, Autism Spectrum Disorders, Children, Visual Impairments
Melika Kangarani-Farahani; Myrah Anum Malik; Jill G. Zwicker – Journal of Autism and Developmental Disorders, 2024
This article comprehensively reviews motor impairments in children with autism spectrum disorder (ASD) to: (1) determine the prevalence of motor problems in children with ASD; (2) understand the nature of motor difficulties in ASD and whether they are consistent with developmental coordination disorder (DCD); and (3) determine if the term DCD was…
Descriptors: Meta Analysis, Autism Spectrum Disorders, Databases, Intellectual Disability
Timothy C. Nielsen; Natasha Nassar; Kelsie A. Boulton; Adam J. Guastella; Samantha J. Lain – Journal of Autism and Developmental Disorders, 2024
Routinely collected data help estimate the prevalence of autism spectrum disorder (ASD) in jurisdictions without active autism surveillance. We created a population-based cohort of 1,211,834 children born in 2002-2015 in New South Wales, Australia using data linkage. Children with ASD were identified in three datasets -- disability services,…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Children, Student Characteristics
Amy Keefer; Vini Singh; Yeon Sik Jang; Leigh Alon; Madison Surmacz; Calliope Holingue; Stewart H. Mostofsky; Roma A. Vasa – Journal of Autism and Developmental Disorders, 2024
Intolerance of uncertainty (IU) is a multidimensional construct involving maladaptive responses to uncertainty. IU is strongly associated with autism and anxiety, yet no studies have examined its symptom profile in autistic children. This study compares IU symptom profiles in autistic and NT children and in autistic children with and without…
Descriptors: Autism Spectrum Disorders, Anxiety, Symptoms (Individual Disorders), Children
Palm, Camilla V. B.; Glintborg, Dorte; Find, Laura G.; Larsen, Pia V.; Dalgaard, Cilia M.; Boye, Henriette; Jensen, Tina K.; Dreyer, Anja F.; Andersen, Marianne S.; Bilenberg, Niels – Journal of Autism and Developmental Disorders, 2023
Fetal androgen exposure may be associated with autism spectrum disorder (ASD). We studied 1777 mother-child pairs in the prospective Odense Child Cohort. Prenatal androgen exposure was assessed by maternal 3rd trimester testosterone concentrations, maternal polycystic ovary syndrome (PCOS), and 3 months offspring anogenital distance. ASD traits…
Descriptors: Prenatal Influences, Autism Spectrum Disorders, Correlation, Mothers
Laleh Bahrami; Cara T. Miller; Holly Miller; Kathryn L. Carlson; Tori E. Foster; Abhinaya Ganesh; David Johnson; Barron L. Patterson; Jeffrey F. Hine – Journal of Autism and Developmental Disorders, 2025
Purpose: A high-quality primary care clinic should provide clear action points and important care coordination for a child receiving a new diagnosis of autism spectrum disorder (ASD). Unfortunately, a substantial proportion of caregivers report little-to-no post-diagnosis support from their home clinics and primary care providers often report lack…
Descriptors: Children, Autism Spectrum Disorders, Intervention, Residential Care
Zijie Ma; Wangqian Fu; Peidi Gu; He Siting; Yang Liujing; Wei Zhou – Journal of Autism and Developmental Disorders, 2024
This study examined parental perception of the importance of friendship and five other educational outcomes from 101 Chinese parents of children with autism spectrum disorders between the ages of 3 and 12 years. Results showed Chinese parents considered friendship less important than social skills, emotional development, and physical skills and…
Descriptors: Parent Attitudes, Friendship, Autism Spectrum Disorders, Foreign Countries
Marisa A. Patti; Xuejuan Ning; Mina Hosseini; Lisa A. Croen; Robert M. Joseph; Margaret R. Karagas; Christine Ladd-Acosta; Rebecca Landa; Daniel S. Messinger; Craig J. Newschaffer; Ruby Nguyen; Sally Ozonoff; T. Michael O'Shea; Rebecca J. Schmidt; Cindy O. Trevino; Kristen Lyall – Journal of Autism and Developmental Disorders, 2025
Purpose: Prior work developed a shortened 16-item version of the Social Responsiveness Scale (SRS), a quantitative measure of social communication and autism spectrum disorder (ASD)-related traits. However, its properties for use in risk factor estimation have not been fully tested compared to the full SRS. We compared the associations between…
Descriptors: Autism Spectrum Disorders, Risk, Pregnancy, Premature Infants
