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Growing Up with an Additional Disabled Child: The Life Story of a Mother
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Emrah Marul; Hasan Hüseyin Yildirim – International Journal of Contemporary Educational Research, 2023
The aim of this study, which was carried out according to the life story/narrative research design, which is one of the qualitative research methods, is to examine the life story of a mother living with a child with an additional disability. In this context, a 5-year-old child with deficiencies such as hearing loss, autism and ADHD and his mother…
Descriptors: Mothers, Children, Disabilities, Young Children
Community Participation of Families of Children with Profound Intellectual and Multiple Disabilities in South Africa
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McKenzie, Judith Anne; Kahonde, Callista; Mostert, Karen; Aldersey, Heather Michelle – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Families struggle to support family members with profound intellectual and multiple disabilities (PIMD), especially in low resourced settings where formal services may not be available. Method: The adapted Family Community Participation survey, measuring perceptions of community participation, was administered to 67 primary caregivers…
Descriptors: Family Involvement, Family Needs, Community Services, Child Caregivers
"Continuously Struggling for Balance": The Lived Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities
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Geuze, Liesbeth; Goossensen, Anne; Schrevel, Samuel – Journal of Intellectual & Developmental Disability, 2023
Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon "parenting a child with PIMD." Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research was used. Findings: The essential meaning of the…
Descriptors: Foreign Countries, Children, Parent Attitudes, Child Rearing
Preparation of Mental Health Clinicians to Work with Children with Co-Occurring Autism Spectrum Disorders and Mental Health Needs
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Williams, Marian E.; Haranin, Emily C. – Journal of Mental Health Research in Intellectual Disabilities, 2016
Up to 70% of children with autism spectrum disorders (ASD) have a co-occurring mental health disorder; however, many clinicians feel unprepared to serve children with complex co-occurring conditions. This study surveyed 64 mental health clinicians working in 21 publically-funded mental health agencies in a large urban setting to explore their…
Descriptors: Autism, Pervasive Developmental Disorders, Mental Health, Mental Disorders