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Sedlácková, Dagmar; Kantor, Jirí; Dömischová, Ivona; Kantorová, Lucia – British Journal of Learning Disabilities, 2023
Background: The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods: Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic…
Descriptors: Experience, Mothers, Severe Disabilities, Severe Intellectual Disability
Griffin, Joanna; Gore, Nick – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders
Christine Holyfield; Elizabeth Lorah – Journal of Developmental and Physical Disabilities, 2023
The purpose of this study was to evaluate the effect of two AAC technologies on indices of happiness for school-age children with multiple disabilities during interactions with their school speech-language pathologists. The study applied a post host secondary analysis of a previously completed single-subject alternating treatment design study…
Descriptors: Children, Multiple Disabilities, Augmentative and Alternative Communication, Assistive Technology
Luijkx, Jorien; van der Putten, Annette A. J.; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2016
Background: Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling's quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having…
Descriptors: Siblings, Severe Intellectual Disability, Multiple Disabilities, Sibling Relationship
Munde, Vera; Vlaskamp, Carla; Ruijssenaars, Wied; Nakken, Han – Education and Training in Autism and Developmental Disabilities, 2011
In the support of individuals with profound intellectual and multiple disabilities (PIMD), assessing the level of alertness is a recurring issue for parents and other direct support persons. Although observations show clear advantages above and beyond other assessment methods, there are problems related to this method as well. Subjectivity of…
Descriptors: Multiple Disabilities, Observation, Severe Disabilities, Cognitive Ability

Matson, Johnny L.; And Others – Research in Developmental Disabilities, 1988
Mentally retarded emotionally disturbed children (N=31) were compared on the Child Depression Inventory and the Child Behavior Profile with 31 children in a normal school setting. Correlational data showed a strong relationship between the cut-off scores for both measures suggesting that similarities exist between depression in mentally retarded…
Descriptors: Behavior Patterns, Children, Depression (Psychology), Emotional Disturbances
Smith, Ashley J.; Bihm, Elson M.; Tavkar, Poonam; Sturmey, Peter – Research in Developmental Disabilities: A Multidisciplinary Journal, 2005
Two studies assessed the reliability and utility of the Stimulus Preference Coding System (SPCS) to measure approach, avoidance, and happy and unhappy behaviors in persons with developmental disorders. Study 1 took place in an institutional setting. The nine participants were all adults with mental retardation and multiple associated disabilities.…
Descriptors: Psychological Patterns, Developmental Disabilities, Mental Retardation, Multiple Disabilities
Krakovsky, Gina; Huth, Myra Martz; Lin, Li; Levin, Ron S. – Research in Developmental Disabilities: A Multidisciplinary Journal, 2007
Children with multiple handicaps, including cerebral palsy (CP), often lose or regress in their functional ability through adolescence and young adulthood. The purpose of this study was to examine functional and psychosocial changes in children, adolescents, and young adults with CP. A retrospective chart review and a prospective telephone…
Descriptors: Young Adults, Physical Therapy, National Standards, Depression (Psychology)