Background: Little is known about the health literacy of children living with long-term conditions. This study aimed to gain insight into the life of children with a long-term condition in the context of health literacy, specifically their understanding of their health and the barriers and facilitators to sharing information about their condition…

Background: There is little research comparatively assessing prevalence of pain between older people either with or without intellectual disability. This paper explores health and social factors associated with chronic pain in these two groups. Method: A cross-sectional survey was undertaken in New South Wales and Queensland, Australia. Inclusion…

Background: In a cohort of adults with intellectual disability who were followed for up to 16-years, we investigated characteristics associated with frequent emergency department (ED) presentations, hospitalisation, and psychiatric care. Method: Community-dwelling adults with intellectual disability residing in Queensland, Australia, were followed…

Introduction: The aim of this systematic review was to synthesize the literature on the correlates and risk factors of anxiety among adults with ID. Methods: Following the PRISMA guidelines, a systematic search of peer-reviewed literature was conducted across six major electronic databases. From an initial screening of 844 records, 13 studies were…

Background: There is paucity of research from Australia about comorbidity in older people with intellectual disability (PwID). This paper examines the burden of chronic diseases and associated sociodemographic correlates in a cohort of PwID aged 60+. Methods: A cross-sectional survey was used with community-dwelling older PwID in urban/rural…

Objective: Increasing numbers of young people live with a chronic health condition. Much research to date has explored young people's self-management of their illness and related symptomatology. Relatively less is known about how young people manage their long-term condition in everyday social contexts. This paper reports on findings from a…

Living with a chronic health condition in the home can have a debilitating effect on the psychosocial and psychoaffective wellbeing of the entire family. This is particularly the case for healthy school aged siblings. This research investigated the perceptions and experiences of at-school support for well-siblings to evaluate its effectiveness in…

Students' educational and behavioural outcomes can be adversely impacted by the unique challenges posed by chronic health conditions. As some children and adolescents may live with these challenges throughout their education, hospital-based educators play a crucial role in reducing the impacts of health conditions on educational outcomes. This…

Chronic health conditions in children and young people can have a significant impact on their ability to maintain engagement in school, education, and learning. While this functional limitation affects only about 1.6% of all children and young people, the absolute number is not inconsequential. In Australia, for example, the number is in the order…

Background: People with intellectual disability and chronic and complex support needs often require unique models of care that are intensive and expensive. How these supports can be continued within a rapidly changing policy and funding context in Australia, has not been fully determined. Method: This descriptive study utilised a retrospective…

Background: Early reading success is predicated on language and pre-literacy skills. Children who are behind their peers in language and pre-literacy development before formal schooling are less likely to be proficient beginner readers, and difficulties may persist throughout primary school and beyond. We know children experiencing adversity are…

Background: Evidence suggests that adults with intellectual disability (ID) are vulnerable to poor health outcomes. This paper describes the health status and medication use of adults with ID in Western Australia. Method: We conducted a cross-sectional survey by interview of 328 adults with ID (M age = 37 years, range: 18-82) and their…

Young people are encouraged to take responsibility for their educational outcomes by actively engaging in their education (their 'project-of-self'), but many also take responsibility for the care of family members who have serious health concerns (their 'project-of-family'). Drawing on the concepts of responsibilisation and neoliberal governance,…

This article reports on a study into students with disabilities and their experiences of eLearning at Curtin University in Australia. The results are compared to an earlier study of students at Open Universities Australia (OUA) (Kent 2016). The results confirm the earlier study's findings that these students are drawn to eLearning. The prevalence…

Children with chronic illness often experience difficulties at school, yet little is known about the impact of the child's illness on siblings' school experiences. This study investigated parents' perceptions of siblings' school experiences and school support. We conducted semi-structured telephone interviews with 27 parents of children with a…