Young people in physical isolation because of significant illness experience disconnection from social and educational contexts. A ground-breaking intervention in New Zealand aimed to foster social inclusion for young people who are hospital-or-home-bound due to cancer treatment. A formative assessment of five young people aged 13-18, their…

Chronically ill students have been excluded from many conversations about access in higher education. These students have conditions that impact their daily lives and can carry stigma with them, which in turn can impact their academic performance. Additionally, chronically ill students have largely been excluded from the literature in higher…

Advance care planning (ACP) can assist patients and their families in navigating personal and medical choices at the end-of-life; however, these conversations often transpire too late. Primary care providers (PCPs) frequently develop extended relationships with their patients, especially those with chronic disease, and possess opportunities…

Purpose: Americans with rheumatoid arthritis (RA) represent an emerging vocational rehabilitation (VR) clientele. Method: Following an overview of the etiology, incidence, prevalence, and impact of RA, the authors present strategies to meet the service and support needs of Americans with RA across the phases of the VR process. Results: The…

Purpose: This article outlines the experience of conducting Interpretative Phenomenological Analysis research into the chronic illness of Inflammatory Bowel Disease, an incurable condition of the gastro-intestinal tract which results in numerous physically and psychologically symptoms that are difficult to live with, by a researcher who shares the…

Introduction: The aim of this systematic review was to synthesize the literature on the correlates and risk factors of anxiety among adults with ID. Methods: Following the PRISMA guidelines, a systematic search of peer-reviewed literature was conducted across six major electronic databases. From an initial screening of 844 records, 13 studies were…

In this reflective essay, Andrea Avery considers how teaching Lucy Grealy's 1994 Autobiography of a Face in a memoir class functions to cultivate embodied vulnerability among high school seniors. She discusses her own identity as a disabled/chronically ill teacher and how her positioning of and interaction with Grealy's text invites her students…

Inclusive education communities and systems are based on how teachers can use their knowledge, skills, and social awareness to meet the increasingly diverse needs of the learners within their classrooms. International research suggests that teachers often feel underprepared to meet the needs of all learners and are largely ill-prepared to know how…

Background: Constipation is common in children with intellectual disabilities and/or autism, but poorly researched. This study looks to understand parental knowledge, attitudes and management practices towards constipation in children with intellectual disabilities and/or autism. Methods: A cross-sectional online survey developed with patient…

Early childhood educator preparation program curricula contain limited course work and accompanying field experiences on chronic illness management and supporting young children with these conditions. The current study examines data from 319 kindergarten to third grade teachers from the southeastern United States and their perceptions of statewide…

Children with complex congenital heart defects often show delays and deficits in cognitive, language, motor, and social-emotional functioning. As such, the American Academy of Pediatrics and the American Heart Associated recommend ongoing monitoring and support of development. In conjunction with the formal therapeutic supports frequently…

Background: One Health refers to the dynamic interdependence of human, animal and environmental health and provides a unique lens through which to examine health problems. Purpose: The purposes of this manuscript were: (1) to contextualize One Health in public health and health education; (2) provide examples of a One Health approach to…

The need for improved competency in the health care and caregiving workforce is shaped by several factors. These include demographic shifts, a shortage of trained geriatricians, lack of primary health-care providers with adequate training in geriatrics, and persisting unmet needs reflected by poor health status indicators of older Floridians.…

This account of practice focuses on using action learning (AL) from both the facilitator and student experience during the dissertation stage of a postgraduate degree to resolve wicked workplace problems. The action learning process was used to explore and create a catalyst for change through research that explored the wicked problem of…

There is a growing recognition that research and implementation projects should be carried out "with" or "by" young people with chronic conditions, instead of "about" or "for" them. The current study aimed to explore how young people with chronic conditions experience their involvement in a participatory…