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Rachel Haine-Schlagel; Christina Corsello; Barbara Caplan; Hilary Gould; Lauren Brookman-Frazee – Journal of Autism and Developmental Disorders, 2024
Families of children with autism spectrum disorder (ASD) face challenges engaging in services following diagnosis. This study: (1) developed and implemented a toolkit to tailor ASD evaluation feedback to families' needs, and (2) evaluated caregiver and provider perceptions of the toolkit. Focus groups with providers (N = 11) informed toolkit…
Descriptors: Autism Spectrum Disorders, Clinical Diagnosis, Diagnostic Tests, Parent Attitudes
Megan Micheletti; Briana H. Brukilacchio; Haley Hooper-Boyle; Tajudeen Basiru; Meredith I. Brinster; Sheri Ravenscroft; Jeffrey D. Shahidullah – Journal of Autism and Developmental Disorders, 2025
Given existing barriers to a timely autism diagnosis, this study compares the efficiency and equity of diagnoses conducted in-person vs. telehealth in a developmental behavioral pediatrics setting. The transition to telehealth was prompted by the COVID-19 pandemic. Eleven months of clinic data in electronic medical records were retrospectively…
Descriptors: Program Evaluation, Program Effectiveness, Autism Spectrum Disorders, Clinical Diagnosis
Serene Habayeb; Anne Inge; Erica Eisenman; Sheina Godovich; Maria Lauer; Amanda Hastings; Vanessa Fuentes; Melissa Long; Xavier Marshall; Alexis Khuu; Leandra Godoy – Autism: The International Journal of Research and Practice, 2025
Primary care providers are often the first to identify concerns for autism through routine screening in the first 2 years of life. However, most children do not receive a diagnosis until years later resulting in delays accessing appropriate intervention. Delays in diagnosis disproportionately impact those who are otherwise disadvantaged by society…
Descriptors: Pediatrics, Primary Health Care, Disability Identification, Autism Spectrum Disorders
Kathy Leadbitter; Louisa Harrison; Sophie Langhorne; Ceri Ellis; Richard Smallman; Amelia Pearson; Latha Hackett; Leo Kroll; Alison Dunkerley; Hilary Beach; June Gilbert; Amy van Gils; Tessa Hutton; Jonathan Green; Penny Bee; REACH-ASD Team – Autism: The International Journal of Research and Practice, 2025
Caregivers can experience significant challenges following their child's autism diagnosis and often seek informational, relational and emotional support. Post-diagnostic support for caregivers has received relatively little research attention and represents a significant gap in the international evidence base. We used an iterative codesign process…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Parents, Caregivers