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Chung Eun Lee; Sehrish Shikarpurya – Journal of Applied Research in Intellectual Disabilities, 2025
Background and Aims: Siblings play a crucial role in shaping and guiding the experiences of their brother or sister with a disability across the lifespan. However, little is known about the positive outcomes of their roles and experiences as siblings. Understanding the positive outcomes challenges stereotypes and the stigma associated with…
Descriptors: Adults, Attitudes toward Disabilities, Intellectual Disability, Sibling Relationship
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McKenzie, Judith; McConkey, Roy – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Internationally adults with intellectual disability are largely cared for by their families, especially in low- to middle-income countries (LAMIC). Compared to high-income countries, little is known about their experiences in LAMIC such as South Africa. Methods: Focus group discussions were carried out with 37 family caregivers (FCGs)…
Descriptors: Intellectual Disability, Adults, Caring, Caregivers
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Chapman, Rohhss – Journal of Applied Research in Intellectual Disabilities, 2014
Background: The role of the support worker in self-advocacy groups for people with intellectual disability is pivotal in setting the scene for empowerment. However, despite the growing importance of the role, it has attracted very little scrutiny. Method: The study developed an inclusive team approach working alongside researchers labelled with…
Descriptors: Self Advocacy, Participatory Research, Inclusion, Mental Retardation
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van Loon, Jos; Knibbe, Jeroen; Van Hove, Geert – Journal of Applied Research in Intellectual Disabilities, 2005
Background: Concerns have been raised about the quality of medical care available for people with intellectual disabilities in community-based services. The aims of this study were to evaluate a model of medical care developed during a programme of deinstitutionalization, based on a specialist physician supporting general practitioners (GPs).…
Descriptors: Medical Services, Mental Retardation, Physicians, Normalization (Disabilities)