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Download full textConnecticut Univ., Farmington. Div. of Human Genetics. – 1987
This bibliography cites genetics literature identified during a project to investigate the issue of accessibility to genetics services through the reimbursement process. Citations represent both traditional published literature and such "fugitive literature" as unpublished manuscripts, government documents, service provider protocols, and health…
Descriptors: Congenital Impairments, Delivery Systems, Genetics, Health Care Costs
Patrias, Karen – 1987
This bibliography, prepared by the National Library of Medicine through a literature search of its online databases, covers all aspects of newborn screening. It includes references to screening for: inborn errors of metabolism, such as phenylketonuria and galactosemia; hemoglobinopathies, particularly sickle cell disease; congenital hypothyroidism…
Descriptors: Congenital Impairments, Cystic Fibrosis, Disabilities, Handicap Identification
Illinois Public Health Association, Springfield. – 1988
Four topical bibliographies list materials held by the Illinois Birth to Three Clearinghouse which collects information of interest to parents, professionals, and policymakers on health, education, and development in infancy and early childhood. Bibliography number 18, "Materials on Home Care," contains 52 entries for books and journal…
Descriptors: Congenital Impairments, Disabilities, Family Programs, Genetics
National Center for Education in Maternal and Child Health, Washington, DC. – 1988
Genetic disease and birth defects pose a unique set of concerns for affected individuals and their families. The need of these individuals for pastoral care--guidance for difficult decisions, bereavement counseling, and support--has opened a new area of ministry for pastors and pastoral counselors of all faiths. This ministry occupies the…
Descriptors: Bioethics, Biology, Clergy, Congenital Impairments
Miles, Barbara – 1995
This overview provides basic information on the causes of deaf-blindness and the particular challenges faced by individuals who are deaf-blind. Causes of deaf-blindness include various syndromes, multiple congenital anomalies, prematurity, congenital prenatal dysfunction, and various postnatal causes. Differences between people deaf-blind from…
Descriptors: Adults, Adventitious Impairments, Caregiver Role, Children
National Inst. of Child Health and Human Development (NIH), Bethesda, MD. – 1991
This booklet summarizes current knowledge about phenylketonuria (PKU), an inherited condition that results in severe mental retardation if untreated, and discusses the psychoeducational implications of the condition. The introduction stresses the importance of early diagnosis (during the first days of life) and the effectiveness of a diet that…
Descriptors: Child Psychology, Clinical Diagnosis, Congenital Impairments, Early Identification
National Center for Education in Maternal and Child Health, Washington, DC. – 1986
The scope of this bibliography encompasses the social and psychological aspects of genetic disorders. The bibliography lists selected English-language articles and books from the professional literature along with audiovisual materials produced by both voluntary organizations and professional filmmakers. The entries are organized by the following…
Descriptors: Adoption, Audiovisual Aids, Clergy, Clinical Diagnosis
