The birth of a child is among the most joyous events human beings ever experience. After months of anticipation and preparation, a precious little one joins a family. Parents dream of the things they will do with this new arrival, the birthdays, the family vacations, the continuing of family traditions. Above all, parents hope to provide the best…

Craniofacial defects such as cleft lip and cleft palate are among the most common of all birth defects in the United States, with one in every 600 newborns affected. Cleft lip and/or palate can occur as an isolated condition or may be one component of an inherited disease or syndrome. Dealing with the condition is an extremely difficult and…

As an orthopaedic surgeon who has treated numerous cases of clubfoot in his career, the author knows that it takes exceptional parents to deal with the challenges of having a child born with a clubfoot. However, it should be noted that a clubfoot diagnosis does not mean a life of pain, deformity, and disability for a child. Today's treatment…

Although neurological anomalies seem to be on the rise, this author wonders if the disorder known as autism is truly a genuine epidemic. Marcum explains why a better way of labelling might be more helpful. He contends that autism is not a "disease," but rather a syndrome--a collection of symptoms. To label all brain disorders or developmental…

Spina bifida is the most common, permanently disabling birth defect in the United States. It is a birth defect that involves incomplete formation of the spine during the first month of pregnancy--often before a woman even knows she is pregnant. Everyday, an average of eight babies are born with spina bifida or a similar birth defect of the brain…

According to the National Organization for Rare Disorders (NORD), a rare or "orphan" disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. "Exceptional Parent" ("EP") recognizes that when a disorder affects a child or adult, it…

In this article, the author shares the story of his son, Joshua Pauls. Josh is an energetic young man who learned at a very young age not to let anything stop him from achieving his dreams. Born with a birth defect known as bilateral bibia hemimelia, which means he was born without his tibia bone in both of his legs, Josh was only 10 months old…

Bowel incontinence, also called fecal incontinence, is the loss of control over liquid or solid stools. It can occur at any age--as a child, teenager, or adult. Severity can range from infrequent leakage of a small amount of stool to total loss of bowel control. Some persons might feel the urge to have a bowel movement but be unable to control it…

In this article, the author relates how woodworking had helped him cope with his son's illness. His son, Evan, was diagnosed with Noonan's Syndrome. Due to his desire in showing his appreciation for the medical personnel who treated his son, the author started to make wooden stools and gave these to the doctors and nurses. His project continued…

In this article, the author profiles her son Nathan Watt, a 14-year-old who was born with Spina Bifida, who does not allow setbacks to keep him from achieving his goals and dreams in the areas of writing, recording, and performing his own music. He has also opened a business website and turned his story, "Anything is Possible," into a color story…

A physically disabled individual shares her horror at decisions of parents and doctors to deny medical treatment to handicapped infants. She avers that every child is born with a mix of talents and shortcomings, some more marked than others, and that disability should not be punished. (CL)

The author reviews his experiences as the father of a child with spina bifida, a congenital problem in which the spine is not completely enclosed. He recounts his feelings upon first finding out about the condition and his son's subsequent surgeries and crises. (CL)

The characteristics of Prader-Willi syndrome, which include obesity, short stature, and mental retardation, are explained; and the history and activities of the Prader-Willi Syndrome Parents and Friends organization, whose primary purpose is to act as a vehicle of communication for sharing experiences on how to cope with the syndrome, are…

This article emphasizes the importance for parents and caregivers in recognizing and responding to a child's sounds and vocalizations as such are a child's initial attempts at speech and language production. The article presents important factors to consider in determining the presence of a child's speech, language, communication, and learning…

A congenitally disabled psychotherapist recounts her own experiences in learning to accept her body and notes the differences in self-esteem needs of congenitally versus adventitiously impaired persons. Helpful parental attitudes and actions are discussed. (CL)