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ERIC Number: EJ1468992
Record Type: Journal
Publication Date: 2025-Mar
Pages: 10
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: EISSN-1468-3148
Available Date: 2025-03-25
The Role of Specialised Medical ID Expertise in Care Consultations for People with Intellectual Disabilities: Experiences of Caregivers and Patients
Marian E. J. Breuer1; Esther J. Bakker-van Gijssel1; Tim Pelle1; Jenneken Naaldenberg1; Geraline L. Leusink1
Journal of Applied Research in Intellectual Disabilities, v38 n2 e70042 2025
Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and skills, (2) communication between participants and the ID physician and (3) coordination between the ID physician and other professionals. Results: Seven themes addressing the roles of the ID physician were identified. Five roles relate to actions and attributes during medical consultations: clinician, patient-centred doctor, holistic physician, human and sparring partner for the patient's network. Two roles relate to actions and attributes around medical consultations: coordinator and advocate. Conclusions: Patients with intellectual disabilities and their caregivers value ID physicians' roles beyond clinical skills during consultations, including roles related to care coordination, having a professional network and advocating in a broader context around medical consultations.
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: 1Department of Primary and Community Care, Radboud University Medical Center, Research Institute for Medical Innovation, Nijmegen, the Netherlands