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Diagnostic Journey for Tuberous Sclerosis Complex--Interviews from a Clinical Trial
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Carly Hyde; Logan Shurtz; Nicole McDonald; Maria Pizzano; Charles A. Nelson; Elizabeth A. Thiele; Connie Kasar; Shafali Jeste – American Journal on Intellectual and Developmental Disabilities, 2025
Tuberous sclerosis complex (TSC) is a genetic condition characterized by both medical and neuropsychiatric diagnoses that emerge across the lifespan. As part of a clinical trial, caregivers of children with TSC were interviewed about their experiences navigating medical, school, and social services. Semistructured interviews (N = 20) with…
Descriptors: Genetic Disorders, Neuropsychology, Clinical Diagnosis, Control Groups
A Case-Controlled Investigation of Tactile Reactivity in Young Children with and without Global Developmental Delay
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Barney, Chantel C.; Tervo, Raymond; Wilcox, George L.; Symons, Frank J. – American Journal on Intellectual and Developmental Disabilities, 2017
Assessing tactile function among children with intellectual, motor, and communication impairments remains a clinical challenge. A case control design was used to test whether children with global developmental delays (GDD; n = 20) would be more/less reactive to a modified quantitative sensory test (mQST) compared to controls (n = 20). Reactivity…
Descriptors: Young Children, Developmental Delays, Tactual Perception, Comparative Analysis
Efficacy and Social Validity of Peer Network Interventions for High School Students with Severe Disabilities
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Asmus, Jennifer M.; Carter, Erik W.; Moss, Colleen K.; Biggs, Elizabeth E.; Bolt, Daniel M.; Born, Tiffany L.; Bottema-Beutel, Kristen; Brock, Matthew E.; Cattey, Gillian N.; Cooney, Molly; Fesperman, Ethan S.; Hochman, Julia M.; Huber, Heartley B.; Lequia, Jenna L.; Lyons, Gregory L.; Vincent, Lori B.; Weir, Katie – American Journal on Intellectual and Developmental Disabilities, 2017
This randomized controlled trial examined the efficacy of peer network interventions to improve the social connections of 47 high school students with severe disabilities. School staff invited, trained, and supported 192 peers without disabilities to participate in individualized social groups that met throughout one semester. Compared to…
Descriptors: High School Students, Severe Disabilities, Peer Relationship, Social Networks
The Emotional Experience of People with Intellectual Disability: An Analysis Using the International Affective Pictures System
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Bermejo, Belen G.; Mateos, Pedro M.; Sanchez-Mateos, Juan Degado – American Journal on Intellectual and Developmental Disabilities, 2014
The present study provides information on the emotional experience of people with intellectual disability. To evaluate this emotional experience, we have used the International Affective Pictures System (IAPS). The most important result from this study is that the emotional reaction of people with intellectual disability to affective stimuli is…
Descriptors: Emotional Response, Mental Retardation, Pictorial Stimuli, Affective Behavior
Impact of Attention Training on Academic Achievement, Executive Functioning, and Behavior: A Randomized Controlled Trial
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Kirk, Hannah; Gray, Kylie; Ellis, Kirsten; Taffe, John; Cornish, Kim – American Journal on Intellectual and Developmental Disabilities, 2017
Children with intellectual and developmental disabilities (IDD) experience significant difficulties in attention, learning, executive functions, and behavioral regulation. Emerging evidence suggests that computerized cognitive training may remediate these impairments. In a double blind controlled trial, 76 children with IDD (4-11 years) were…
Descriptors: Attention Control, Training, Academic Achievement, Executive Function
Computerized Memory Training Leads to Sustained Improvement in Visuospatial Short-Term Memory Skills in Children with Down Syndrome
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Bennett, Stephanie J.; Holmes, Joni; Buckley, Sue – American Journal on Intellectual and Developmental Disabilities, 2013
This study evaluated the impact of a computerized visuospatial memory training intervention on the memory and behavioral skills of children with Down syndrome. Teaching assistants were trained to support the delivery of a computerized intervention program to individual children over a 10-16 week period in school. Twenty-one children aged 7-12…
Descriptors: Intervention, Control Groups, Down Syndrome, Short Term Memory
Designs and Analyses of Psychotropic and Behavioral Interventions for the Treatment of Problem Behavior among People with Intellectual and Developmental Disabilities
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Courtemanche, Andrea B.; Schroeder, Stephen R.; Sheldon, Jan B. – American Journal on Intellectual and Developmental Disabilities, 2011
A combination of behavioral and medication-based interventions has been the most effective form of treatment for reducing problem behavior in individuals with intellectual and developmental disabilities. Evaluating the 2 types of interventions in combination and separately may require that researchers adapt methods traditionally used to evaluate…
Descriptors: Control Groups, Mental Retardation, Developmental Disabilities, Methods
Eye-Movement Patterns of Readers with Down Syndrome during Sentence-Processing: An Exploratory Study
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Frenck-Mestre, Cheryl; Zardan, Nathalie; Colas, Annie; Ghio, Alain – American Journal on Intellectual and Developmental Disabilities, 2010
Eye movements were examined to determine how readers with Down syndrome process sentences online. Participants were 9 individuals with Down syndrome ranging in reading level from Grades 1 to 3 and a reading-level-matched control group. For syntactically simple sentences, the pattern of reading times was similar for the two groups, with longer…
Descriptors: Control Groups, Sentences, Reading Processes, Eye Movements
Everyday Memory and Working Memory in Adolescents with Mild Intellectual Disability
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Van der Molen, M. J.; Van Luit, J. E. H.; Van der Molen, Maurits W.; Jongmans, Marian J. – American Journal on Intellectual and Developmental Disabilities, 2010
Everyday memory and its relationship to working memory was investigated in adolescents with mild intellectual disability and compared to typically developing adolescents of the same age (CA) and younger children matched on mental age (MA). Results showed a delay on almost all memory measures for the adolescents with mild intellectual disability…
Descriptors: Mental Age, Mild Mental Retardation, Adolescents, Short Term Memory
Using Participant Data to Extend the Evidence Base for Intensive Behavioral Intervention for Children with Autism
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Eldevik, Sigmund; Hastings, Richard P.; Hughes, J. Carl; Jahr, Erik; Eikeseth, Svein; Cross, Scott – American Journal on Intellectual and Developmental Disabilities, 2010
We gathered individual participant data from 16 group design studies on behavioral intervention for children with autism. In these studies, 309 children received behavioral intervention, 39 received comparison interventions, and 105 were in a control group. More children who underwent behavioral intervention achieved reliable change in IQ (29.8%)…
Descriptors: Control Groups, Intervention, Autism, Intelligence Quotient
Neural Mechanisms Underlying Action Observation in Adults with Down Syndrome
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Virji-Babul, Naznin; Moiseev, Alexander; Cheung, Teresa; Weeks, Daniel J.; Cheyne, Douglas; Ribary, Urs – American Journal on Intellectual and Developmental Disabilities, 2010
Results of a magnetoencephalography (MEG) brain imaging study conducted to examine the cortical responses during action execution and action observation in 10 healthy adults and 8 age-matched adults with Down syndrome are reported. During execution, the motor responses were strongly lateralized on the ipsilateral rather than the contralateral side…
Descriptors: Control Groups, Observation, Down Syndrome, Adults
Auditory Brainstem Evoked Responses in Newborns with Down Syndrome
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Kittler, Phyllis M.; Phan, Ha T. T.; Gardner, Judith M.; Miroshnichenko, Inna; Gordon, Anne; Karmel, Bernard Z. – American Journal on Intellectual and Developmental Disabilities, 2009
Auditory brainstem evoked responses (ABRs) were compared in 15 newborns with Down syndrome and 15 sex-, age-, and weight-matched control newborns. Participants had normal ABRs based upon values specific to 32- to 42-weeks postconceptional age. Although Wave III and Wave V component latencies and the Wave I-III interpeak latency (IPL) were shorter…
Descriptors: Down Syndrome, Neonates, Control Groups, Brain
Evidence for Slowing as a Function of Index of Difficulty in Young Adults with Down Syndrome
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Lam, Melanie Y.; Hodges, Nicola J.; Virji-Babul, Naznin; Latash, Mark L. – American Journal on Intellectual and Developmental Disabilities, 2009
Speed-accuracy trade-offs in persons with Down syndrome and typically developing controls were tested with a Fitts' task. Movement time scaled linearly with index of difficulty in both groups, and there were no accuracy differences. Persons with Down syndrome were slower than typically developing individuals. Regression analysis on movement time…
Descriptors: Down Syndrome, Young Adults, Control Groups, Task Analysis