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Direct linkLauren Berkovits; Jan Blacher; Abbey Eisenhower; Stuart Daniel – Journal of Autism and Developmental Disorders, 2025
Purpose: Comparative data of autism-sensitive standardized measures of emotion regulation and lability, describing percentage change over time for populations of young autistic children, are currently publicly unavailable. We propose publication of such data as a support for future therapeutic intervention studies. Methods: We generate and present…
Descriptors: Emotional Response, Check Lists, Autism Spectrum Disorders, Comparative Analysis
Collin Shepley – Journal of Autism and Developmental Disorders, 2024
Program evaluation is an essential practice for providers of behavior analytic services, as it helps providers understand the extent to which they are achieving their intended mission to the community they serve. A proposed method for conducting such evaluations, is through the use of a consecutive case series design, for which cases are…
Descriptors: Program Evaluation, Data Collection, Data Analysis, Evaluation Methods
DuBay, Michaela; Watson, Linda R.; Baranek, Grace T.; Lee, Helen; Rojevic, Carolina; Brinson, William; Smith, Danna; Sideris, John – Journal of Autism and Developmental Disorders, 2021
Screening tools for autism spectrum disorders serve a vital role in early identification of all children who may need evaluation and support. Recent studies suggest that traditional methods used in this field to translate such tools may be insufficient for maintaining linguistic, construct, or technical equivalence, resulting in screening tools…
Descriptors: Autism, Screening Tests, Identification, Translation
Kalb, L.; Jacobson, L.; Zisman, C.; Mahone, E.; Landa, R.; Azad, G.; Menon, D.; Singh, V.; Zabel, A.; Pritchard, A. – Journal of Autism and Developmental Disorders, 2019
The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology…
Descriptors: Caregiver Attitudes, Autism, Pervasive Developmental Disorders, Neurological Impairments
Mandy, William; Clarke, Kiri; McKenner, Michele; Strydom, Andre; Crabtree, Jason; Lai, Meng-Chuan; Allison, Carrie; Baron-Cohen, Simon; Skuse, David – Journal of Autism and Developmental Disorders, 2018
We developed a brief, informant-report interview for assessing autism spectrum conditions (ASC) in adults, called the Developmental, Dimensional and Diagnostic Interview-Adult Version (3Di-Adult); and completed a preliminary evaluation. Informant reports were collected for participants with ASC (n = 39), a non-clinical comparison group (n = 29)…
Descriptors: Autism, Pervasive Developmental Disorders, Adults, Diagnostic Tests
Webb, Sara Jane; Bernier, Raphael; Henderson, Heather A.; Johnson, Mark H.; Jones, Emily J. H.; Lerner, Matthew D.; McPartland, James C.; Nelson, Charles A.; Rojas, Donald C.; Townsend, Jeanne; Westerfield, Marissa – Journal of Autism and Developmental Disorders, 2015
The EEG reflects the activation of large populations of neurons that act in synchrony and propagate to the scalp surface. This activity reflects both the brain's background electrical activity and when the brain is being challenged by a task. Despite strong theoretical and methodological arguments for the use of EEG in understanding the…
Descriptors: Autism, Brain, Medicine, Data Collection
Ring, Melanie; Bowler, Dermot M.; Gaigg, Sebastian B. – Journal of Autism and Developmental Disorders, 2017
Persons with Autism Spectrum Disorder (ASD) demonstrate good memory for single items but difficulties remembering contextual information related to these items. Recently, we found compromised explicit but intact implicit retrieval of object-location information in ASD (Ring et al. "Autism Res" 8(5):609-619, 2015). Eye-movement data…
Descriptors: Autism, Pervasive Developmental Disorders, Eye Movements, Memory
Rutherford, Marion; Burns, Morag; Gray, Duncan; Bremner, Lynne; Clegg, Sarah; Russell, Lucy; Smith, Charlie; O'Hare, Anne – Journal of Autism and Developmental Disorders, 2018
The 'autism diagnosis crisis' and long waiting times for assessment are as yet unresolved, leading to undue stress and limiting access to effective support. There is therefore a significant need for evidence to support practitioners in the development of efficient services, delivering acceptable waiting times and effectively meeting guideline…
Descriptors: Autism, Pervasive Developmental Disorders, Clinical Diagnosis, Efficiency
Meiri, Gal; Dinstein, Ilan; Michaelowski, Analya; Flusser, Hagit; Ilan, Michal; Faroy, Michal; Bar-Sinai, Asif; Manelis, Liora; Stolowicz, Dana; Yosef, Lili Lea; Davidovitch, Nadav; Golan, Hava; Arbelle, Shosh; Menashe, Idan – Journal of Autism and Developmental Disorders, 2017
Elucidating the heterogeneous etiologies of autism will require investment in comprehensive longitudinal data acquisition from large community based cohorts. With this in mind, we have established a hospital-university-based (HUB) database of autism which incorporates prospective and retrospective data from a large and ethnically diverse…
Descriptors: Autism, Databases, Etiology, Hospitals
Siegel, Matthew – Journal of Autism and Developmental Disorders, 2018
Research on individuals severely affected by autism, including those who are minimally verbal, have intellectual disability or challenging behaviors, has become less common. The Autism Inpatient Collection (AIC) was initiated so data on this group is available to the research community. Ten studies utilizing phenotypic data from the first 350 AIC…
Descriptors: Autism, Patients, Institutionalized Persons, Data Collection
Cosbey, Joanna; Muldoon, Deirdre – Journal of Autism and Developmental Disorders, 2017
This study evaluated the effectiveness of a family-centered feeding intervention, Easing Anxiety Together with Understanding and Perseverance (EAT-UP™), for promoting food acceptance of children with autism spectrum disorder at home. A concurrent multiple-baseline design was used with systematic replication across three families. Baseline was…
Descriptors: Autism, Pervasive Developmental Disorders, Program Evaluation, Program Effectiveness
Taylor, Julie Lounds; DaWalt, Leann Smith – Journal of Autism and Developmental Disorders, 2017
This study examined vocational/educational disruption in the 2-3 years after high school for 36 youth with autism spectrum disorder (ASD). Data were collected three times from parents: during youth's last year of high school and two times after high school exit. Data were coded into categories indicating any versus no disruptions in postsecondary…
Descriptors: Autism, Pervasive Developmental Disorders, High School Graduates, Data Collection
Lampi, Katja M.; Banerjee, P. Nina; Gissler, Mika; Hinkka-Yli-Salomaki, Susanna; Huttunen, Jukka; Kulmala, Ulla; Lindroos, Jarna; Niemela, Solja; Rihko, Maria; Ristkari, Terja; Saanakorpi, Kristiina; Sarlin, Tanja; Sillanmaki, Lauri; McKeague, Ian W.; Surcel, Helja-Marja; Helenius, Hans; Brown, Alan S.; Sourander, Andre – Journal of Autism and Developmental Disorders, 2011
This article presents an overview of the Finnish Prenatal Study of Autism and Autism Spectrum Disorders (FIPS-A), a new study designed to examine the relationship between prenatal serologic factors, mediating and moderating developmental antecedents, and risk of autism spectrum disorders (ASD). The FIPS-A is based on register linkages between…
Descriptors: Autism, Pregnancy, Foreign Countries, Clinics
Belmonte, Matthew K.; Mazziotta, John C.; Minshew, Nancy J.; Evans, Alan C.; Courchesne, Eric; Dager, Stephen R.; Bookheimer, Susan Y.; Aylward, Elizabeth H.; Amaral, David G.; Cantor, Rita M.; Chugani, Diane C.; Dale, Anders M.; Davatzikos, Christos; Gerig, Guido; Herbert, Martha R.; Lainhart, Janet E.; Murphy, Declan G.; Piven, Joseph; Reiss, Allan L.; Schultz, Robert T.; Zeffiro, Thomas A.; Levi-Pearl, Susan; Lajonchere, Clara; Colamarino, Sophia A. – Journal of Autism and Developmental Disorders, 2008
Data sharing in autism neuroimaging presents scientific, technical, and social obstacles. We outline the desiderata for a data-sharing scheme that combines imaging with other measures of phenotype and with genetics, defines requirements for comparability of derived data and recommendations for raw data, outlines a core protocol including…
Descriptors: Autism, Genetics, Measurement Techniques, Data Analysis
Peer reviewedMaestrini, Elena; Marlow, Angela J.; Weeks, Daniel E.; Monaco, Anthony P. – Journal of Autism and Developmental Disorders, 1998
Describes a current research study which is attempting to identify autism susceptibility loci by a systematic screening of the whole human genome by using multiplex families. It reviews the resources and methods used in the study including extensive collection of family data, semiautomated genotyping technology, and specialized statistical…
Descriptors: Autism, Data Collection, Etiology, Family Characteristics
