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Rost, Michael; Nast, Rebecca; Elger, Bernice S.; Shaw, David – Research Ethics, 2021
This paper addresses psychological factors that might interfere with informed consent on the part of stable patients as potential early-phase clinical trial participants. Thirty-six semistructured interviews with patients who had either diabetes or gout were conducted. We investigated stable patients' attitudes towards participating in a…
Descriptors: Patients, Medical Research, Informed Consent, Psychological Patterns
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Morrison-Beedy, Dianne; Ewart, Abigail; Ross, Samiha; Wegener, Rachel; Spitz, Alison – American Journal of Sexuality Education, 2022
Due to limited knowledge and exposure to sexual health information, refugee adolescent girls need health education programming and research studies that oftentimes require parental consent. We sought to understand the parental consent decision-making process of thirteen refugee parents from eight different countries who consented for their…
Descriptors: Refugees, Adolescents, Daughters, Parent Role
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Beardsley, Marc; Martínez Moreno, Judit; Vujovic, Milica; Santos, Patricia; Hernández-Leo, Davinia – British Journal of Educational Technology, 2020
Advances in the field of multimodal learning analytics (MMLA) research is often accomplished by actively exploring new technologies and techniques related to the collection and analysis of data. Exploration of ethical principles and procedures for governing the use of new technologies and techniques, however, is not as readily pursued. As…
Descriptors: Records (Forms), Decision Making, Data Collection, Learning Analytics