Five models for respite care services for families of developmentally disabled persons were developed, including use of a sitter or in-home companion, week-end day care, and boarding and/or group homes. A needs survey of 11 counties in Alabama identified 300 eligible persons and included information on behavior patterns, diagnosis, range and…

In spite of the growing awareness and development of respite services, many families in need of them have little or no access. This is especially true for families whose children have emotional handicaps. A rationale for respite services supports parents' entitlement to respite care, its importance to all family members, and its help in improving…

The monograph provides an historical overview of services for families of disabled children and considers strategies for increasing family support. The historical analysis traces factors influencing the lack of priority placed on family services and describes trends in family resource services. Advantages and drawbacks of the continuum and array…

Considerations related to the design and development of a respite care service delivery network for families of developmentally disabled persons are addressed. A five-component model for developing a respite care service network is presented, focusing on the need for competency-based service-provider training and parent involvement. Lastly,…

Basic information about respite care for individuals with disabilities and their families is presented in a question-and-answer format. The following questions are addressed: "What is respite?"; "Who needs respite services?"; "Who provides respite services?"; "What kinds of services are provided?"; "How…

This paper reports on several projects conducted in Georgia over the past 2 years that move the development of respite care services toward the goal of becoming a "cooperative, collaborative, and coordinated" effort. An overview of respite care in Georgia is provided as well as a summary of strategies used to provide such care. Emerging…

This site visit report describes the development and activities of the New Hampshire Family Support Network for families of people with developmental disabilities, and is based on a review of documents, interviews with key people, and participant observation. It begins with a brief history of family activism in New Hampshire, noting the early high…

This report discusses issues regarding the out-of-home placement of children with developmental disabilities and the need for permanency planning for these children. The document reports on a project which sought to: (1) discern practices of Colorado's Department of Social Services and Division for Developmental Disabilities which affect the…

Family support services are systematic efforts to support natural, adoptive, or foster families who have a family member with a disability. Programs vary in the types of services offered, goals, and number of families served. The most promising approaches to family support provide services that are flexible and individualized, build on informal…

Over the 3 years of funding, 1983-1986, the Volunteers in Partnership with Parents Project (VIPP), a Handicapped Children's Early Education Program (HCEEP) Model Demonstration Program funded by the U.S. Department of Education, designed and implemented a program model for parents in rural North Carolina who had significantly handicapped preschool…

This policy brief reports on a study of how families and agencies cope with growing waiting periods for community services for adults who have mental retardation or developmental disabilities (MR/DD). Preliminary information looks at reasons for long waits, characteristics of families waiting for services, and impact of adult members with MR/DD on…

This final report describes activities and accomplishments of a federally supported program to provide services for children with deaf-blindness in Missouri. The project focused on the development, implementation, and evaluation of a four-component statewide comprehensive service delivery model to serve 193 deaf-blind children and youth through:…

This monograph describes Families First, a family-designed system of mental health care for children in Essex County, New York. Philosophical principles of family-driven service delivery are outlined and illustrated with comments from participants. The planning that went into developing the Families First program is described, including initial…