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Amenable Deaths among Adults with Intellectual and Developmental Disabilities Including Down Syndrome: An Ontario Population-Based Cohort Study
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Lin, Elizabeth; Lunsky, Yona; Chung, Hannah; Durbin, Anna; Volpe, Tiziana; Dobranowski, Kristin; Benadict, Mary Benisha; Balogh, Robert – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Rates of death and avoidable deaths are reportedly higher among people with intellectual and developmental disabilities. This study contributes to our understanding of how mortality and intellectual and development disabilities are associated. Method: General population and intellectual and developmental disabilities adult cohorts were…
Descriptors: Death, Intellectual Disability, Developmental Disabilities, Mortality Rate
Evidence of Continued Reduction in the Age-at-Death Disparity between Adults with and without Intellectual and/or Developmental Disabilities
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Landes, Scott D.; McDonald, Katherine E.; Wilmoth, Janet M.; Carter Grosso, Erika – Journal of Applied Research in Intellectual Disabilities, 2021
Background: This study examines recent trends in the age-at-death disparity between adults with and without intellectual and/or developmental disabilities in the United States. Method: Data were from the 2005-2017 U.S. death certificates. Average age at death was compared between adults whose death certificate did or did not report an intellectual…
Descriptors: Age, Death, Adults, Intellectual Disability
Using Ethnodrama to Support Parents in Sense-Making after Prenatal or Neonatal Diagnosis of a Child's Disabling Condition
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Eaton, Jacqueline; Cheek-O'Donnell, Sydney; Johnson, Erin; Clark, Lauren – Journal of Applied Research in Intellectual Disabilities, 2022
Background/Aims: This study describes the process of developing video vignettes to meet the parent-expressed need for balanced, meaningful messages about what life may be like for parents who have a child with a disability. Each vignette teaches a general audience salient concepts derived from a grounded theory of the parental process of Rescuing…
Descriptors: Video Technology, Technology Uses in Education, Parent Education, Vignettes
Comparing Differences in Support Needs as Perceived by Parents of Adult Offspring with Down Syndrome, Autism Spectrum Disorder and Cerebral Palsy
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Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS),…
Descriptors: Barriers, Down Syndrome, Adults, Autism
Comparing Parental Stress of Children with Neurodevelopmental Disorders: The Case of Williams Syndrome, Down Syndrome and Autism Spectrum Disorders
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Ashworth, Maria; Palikara, Olympia; Van Herwegen, Jo – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Although parental stress is higher for children with neurodevelopmental disorders (NDs), it is unclear how this stress compares to more common NDs. The current study compared stress in parents of children with Williams syndrome (WS), Down syndrome (DS) and autism spectrum disorders (ASD). The impact of individual and contextual factors…
Descriptors: Developmental Disabilities, Neurological Impairments, Autism, Pervasive Developmental Disorders