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Direct linkKristen T. MacKenzie; Kelly B. Beck; Shaun M. Eack; Katharine N. Zeglen; Caitlin M. Conner; Carla A. Mazefsky – Journal of Autism and Developmental Disorders, 2025
Employment, social relationships, and autonomy are priorities to people with intellectual and developmental disabilities (IDDs). However, few validated measures exist to systematically assess these key adult outcomes in this population. This research includes first steps to develop self- and proxy report measures of life outcomes for adults with…
Descriptors: Developmental Disabilities, Adults, Intellectual Disability, Employment
Nesreen Fathi Mahmoud; Zeinab Mohammed; Hassnaa Othman Mohammed; Alshimaa Mohsen Mohamed Lotfy – Journal of Autism and Developmental Disorders, 2025
Children with developmental disabilities have different feeding and swallowing problems. The purposes of the present study were to develop an Arabic version of the FHI-C and to evaluate its validity, consistency, and reliability in Arabic children with developmental disabilities for assessing how feeding and swallowing problems impair the…
Descriptors: Test Validity, Test Reliability, Media Adaptation, Young Children
Sandra Marquis; N. Esmé Marquis; Yona Lunsky; Kimberlyn M. McGrail; Jennifer Baumbusch – Journal of Autism and Developmental Disorders, 2025
Purpose: The purpose of this study was to compare antipsychotic use by youth with intellectual/developmental disabilities to youth without IDD as they transitioned from pediatric to adult health care services. In addition, antipsychotic use was compared between youth with different types of IDD (autism, Fetal Alcohol Syndrome, Down syndrome and…
Descriptors: Drug Therapy, Intellectual Disability, Developmental Disabilities, Autism Spectrum Disorders
Lindsey Sneed; Ryan Taylor; Ian Cook; Michelle Befi; Brianna Fitchett; Doreen Samelson; Vincent Bemmel – Journal of Autism and Developmental Disorders, 2025
Purpose: Wellbeing refers to a person's overall happiness and satisfaction with life. Wellbeing for people with Intellectual and Developmental Disabilities (I/DD) and their families is historically significantly lower compared to the general population. It is important in the context of behavioral health treatment to not only measure the…
Descriptors: Psychometrics, Measures (Individuals), Well Being, Intellectual Disability
Hayden, Nikita K.; Hastings, Richard P.; Kassa, Clare; Danylec, Frances – Journal of Autism and Developmental Disorders, 2023
Adult siblings are potentially important sources of care, support, advocacy, and friendship for their brothers and sisters with intellectual and developmental disabilities (IDD). Drawing on data about 851 adult siblings who completed an online national survey, we examined predictors and potential key moderators of siblings' mental distress,…
Descriptors: Poverty, Siblings, Caregivers, Adults
Muharib, Reem; Walker, Virginia L.; Alresheed, Fahad; Gerow, Stephanie – Journal of Autism and Developmental Disorders, 2021
In this review, we summarized and meta-analyzed 35 single-case intervention studies that involved the use of multiple schedules of reinforcement with 78 individuals with intellectual and developmental disabilities. Based on Tau-U calculations, multiple schedules of reinforcement produced an overall large effect for appropriate communicative…
Descriptors: Reinforcement, Intellectual Disability, Developmental Disabilities, Scheduling
Li, Kuokuo; Fang, Zhenghuan; Zhao, Guihu; Li, Bin; Chen, Chao; Xia, Lu; Wang, Lin; Luo, Tengfei; Wang, Xiaomeng; Wang, Zheng; Zhang, Yi; Jiang, Yi; Pan, Qian; Hu, Zhengmao; Guo, Hui; Tang, Beisha; Liu, Chunyu; Sun, Zhongsheng; Xia, Kun; Li, Jinchen – Journal of Autism and Developmental Disorders, 2022
The clinical similarity among different neuropsychiatric disorders (NPDs) suggested a shared genetic basis. We catalogued 23,109 coding de novo mutations (DNMs) from 6511 patients with autism spectrum disorder (ASD), 4,293 undiagnosed developmental disorder (UDD), 933 epileptic encephalopathy (EE), 1022 intellectual disability (ID), 1094…
Descriptors: Mental Disorders, Genetics, Patients, Autism
Shabnam, Srushti; Swapna, N. – Journal of Autism and Developmental Disorders, 2023
Children with developmental disabilities (DD) exhibit feeding and swallowing difficulties, which can have an impact on nutritional, developmental, and psychological aspects. The existing tools assess the nature of feeding problems and behaviors only. The present study aimed to assess the physical, functional, and emotional domains in children with…
Descriptors: Eating Habits, Health Behavior, Food, Developmental Disabilities
Ferrari, Elisabetta; Butti, Niccolò; Gagliardi, Chiara; Romaniello, Romina; Borgatti, Renato; Urgesi, Cosimo – Journal of Autism and Developmental Disorders, 2023
According to current accounts of social cognition, the emergence of verbal and non-verbal components of social perception might rely on the acquisition of different cognitive abilities. These components might be differently sensitive to the pattern of neuropsychological impairments in congenital neurodevelopmental disorders. Here, we explored the…
Descriptors: Patients, Intellectual Disability, Developmental Disabilities, Congenital Impairments
Hou, Yujia; Yan, Tingrui; Deng, Meng – Journal of Autism and Developmental Disorders, 2023
Parental involvement plays a vital role in the transition from kindergarten to primary school among children with intellectual and developmental disabilities (IDDs); this study aims to explore Chinese parents' experiences of parental involvement during this period. Informed by interpretive phenomenological analysis, semi-structured, one-on-one…
Descriptors: Parent Participation, Students with Disabilities, Intellectual Disability, Developmental Disabilities
Carli Friedman – Journal of Autism and Developmental Disorders, 2024
This study's aim was to examine the impact of pandemic emergency Home- and Community-Based Services (HCBS) payments on the continuity and security of people with intellectual and developmental disabilities (IDD). Using a multilevel logistic regression, we analyzed secondary Personal Outcome Measures interviews from 738 people with IDD (March 2020…
Descriptors: Intellectual Disability, Developmental Disabilities, Pandemics, COVID-19
Fisher, Marisa H.; Shivers, Carolyn M.; Josol, Cynde K. – Journal of Autism and Developmental Disorders, 2020
Although it is well-known that individuals with intellectual and developmental disabilities (IDD) are socially vulnerable, the field lacks valid assessments to identify risk factors for victimization. Parents/caregivers of 428 individuals with IDD (ages 12-53) completed the social vulnerability questionnaire (SVQ), a measure developed to assess…
Descriptors: Psychometrics, Questionnaires, Intellectual Disability, Developmental Disabilities
Mackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
Agarwal, Rumi; Heron, Laura; Naseh, Mitra; Burke, Shanna L. – Journal of Autism and Developmental Disorders, 2021
Transitioning to post-secondary education is often challenging for students with intellectual and developmental disabilities (IDD). To address this, Florida International University, specifically FIU Embrace, piloted the Embrace Mentoring Program (EMP), which provided unique role-specific workshops to both faculty/staff mentors, and student…
Descriptors: Mentors, Students with Disabilities, Intellectual Disability, Developmental Disabilities
Durbin, Anna; Balogh, Robert; Lin, Elizabeth; Wilton, Andrew S.; Lunsky, Yona – Journal of Autism and Developmental Disorders, 2018
This population-based cohort study examined the relationship between level of continuity of primary care and subsequent emergency department (ED) visits for adults with (n = 66,484) and without intellectual and developmental disabilities (IDD)(n = 2,760,670). Individuals with IDD were more likely than individuals with no IDD to visit the ED…
Descriptors: Intellectual Disability, Developmental Disabilities, Adults, Medical Services
