Adults with Intellectual and Developmental Disabilities (IDD) are aging with chronic health issues. However, little is known about the racial disparities in chronic health conditions among adults with IDD. Do racial and ethnic minority adults with IDD experience elevated risk of chronic health conditions like in the general population? How do…

This report provides updated prevalence estimates for diagnosed autism spectrum disorder, intellectual disability, and other developmental delay among children 3-17 years from the 2019-2021 National Health Interview Survey, with differences in prevalence examined between years and by sex, age group, and race and Hispanic origin. Estimates are also…

Transition outcomes for Black youth with intellectual and developmental disabilities are especially dire, lagging even further behind already poor outcomes among their White peers. Self-determination is a key factor in predicting better outcomes, but it is unclear how self-determination is fostered or hindered within the transition process for…

This 10-year study followed 134 caregivers of young adults with autism and intellectual disability, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower…

Barriers to health care access can greatly affect one's health status. Research shows that U.S. adults with intellectual and developmental disabilities (IDD) have poor health and face barriers such as long waits for appointments. However, whether barriers differ by race and ethnicity has not been examined. We conducted a secondary data analysis…

Opportunities and experiences for all students, including students with intellectual and developmental disabilities, to build self-determination abilities and skills is critical to enable positive postsecondary outcomes (e.g., competitive and integrated employment, community access participation). However, racially and ethnically marginalized…

Parents play a central role in their child's development and learning. Parents of children with developmental disabilities have the added challenge of wading through additional services and engaging with professionals to support this process. As families navigate the educational system, this journey includes engaging with a team of people to…

To inform a plan for supporting students with health conditions, District of Columbia Public Schools (DCPS) partnered with the Regional Educational Laboratory Mid-Atlantic on a study to understand how the prevalence of health conditions differs by student characteristics, whether students are supported through a 504 plan or an individualized…

These are the appendixes for the report, "Supporting Students with Health Conditions in District of Columbia Public Schools." The District of Columbia Public Schools (DCPS) partnered with the Regional Educational Laboratory Mid-Atlantic on a study to understand how the prevalence of health conditions differs by student characteristics,…

California continues to fall below national averages in identifying and serving infants, toddlers, and preschoolers with developmental disabilities. The transition between infant/toddler services, administered by the Department of Developmental Services, and preschool services for 3- to 5-year-olds, administered by the Department of Education, is…

New Zealand has few estimates of the prevalence of autism spectrum disorder and no national registry. The use of administrative data sources is expanding and could be useful in autism spectrum disorder research. However, the extent to which autism spectrum disorder can be captured in these data sources is unknown. In this study, we utilised three…

Racial and ethnic health disparities are a pervasive public health problem. Emerging research finds similar health disparities among people with intellectual and developmental disabilities (IDD) compared to nondisabled adults. However, few studies have examined racial and ethnic health disparities among adults with IDD. Using national data, we…

This study compares characteristics and outcomes of 70 defendants with and 1,122 without intellectual and developmental disabilities (IDD) participating in a mental health court. Demographic and clinical characteristics differed, but criminal justice or program characteristics did not. Age, race, marital status, living situation, court location,…

According to the Centers for Disease Control and Prevention, approximately 1 in 6 children are diagnosed with a developmental disability or with developmental delays, which are associated with impairments in physical, language, cognitive, and/or adaptive behaviors. To fill a gap in the literature, the adaptive profile of young children initially…

This "2018-2019 Interagency Autism Coordinating Committee (IACC) Strategic Plan Update" is the work of the IACC membership that was appointed under the Autism CARES Act of 2014. The Committee agreed that the "2016-2017 IACC Strategic Plan" reflected a comprehensive review of the state of the field and provided a set of 23 new…