This policy paper addresses sexuality issues of youth with disabilities and chronic health conditions. The first section introduces the problem of teen pregnancy and pregnancy prevention. The second section provides definitions of disabilities including both visible and invisible disabilities. Risk factors for teen pregnancy are identified and…

In October 1983 Pathfinder, an organization in Minneapolis, Minnesota, was awarded a federal grant to develop a community network model serving children with chronic health conditions and their families. This document describes the model, demonstrated at four sites in Minnesota and Wisconsin. The model is based on four key assumptions: (1)…

This fact sheet offers basic information on developing and implementing rural respite and crisis nursery programs. It first defines "respite" as temporary relief for caregivers and families of children with disabilities, chronic or terminal illnesses, and/or for children at risk of abuse and neglect. It also defines "rural" and…

This final report describes activities and accomplishments of a federally supported 5-year New Jersey project, the Statewide Parent Advocacy Network (SPAN). Project SPAN provides information, training, technical assistance, leadership development and support to families of children with special emotional/behavioral or health needs and/or…

This monograph articulates eight key elements of a family-centered approach to policy and practice for children needing specialized health and developmental services. An introductory section reviews the development of the first edition of the monograph in 1987 and its widespread dissemination and acceptance since that time. Each of the following…

The report relates existing State Title V programs based on the Social Security Act to implications of Public Law 99-457 (the Education of the Handicapped Act Amendments of 1986), especially Part H which authorizes comprehensive coordinated statewide early intervention delivery systems for infants and toddlers with handicaps. In section I,…

This manual on health and safety considerations in caring for young children with exceptional health care needs is a product of Project EXCEPTIONAL (EXceptional Children: Education in Preschool Techniques for Inclusion, Opportunity-building, Nurturing And Learning), which has the goal of increasing the quality and quantity of inclusive child care…

Policy planners can create improved systems of care and new support systems for rural families who are raising children with disabling conditions or special health care needs, by recognizing the unique needs of these families, the ecology of local service delivery systems, and the special resource requirements of rural areas. Lack of information…