Although social groups have "insiders," this construct has not been measured within the disability advocacy community. Examining 405 individuals who applied for an advocacy training program, this study examined the nature of insiderness within the disability advocacy community and ties to individual roles. Participants showed differences…

Inclusive research advances the right of people with lived experience with intellectual and developmental disabilities to be involved in all phases of the research process. From an implementation science perspective, a critical component to inclusive research is addressing how research-based practices are adopted, implemented, and sustained in…

Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs are interdisciplinary, graduate-level training programs that seek to promote improved outcomes for individuals with disabilities and their families. Many of these programs include individuals with disabilities as members of the self-advocacy discipline. In this…

Adults with disabilities have long been at the forefront of disability advocacy in the United States. Grounded in the tenets of radical disability studies and principles of disability justice, this study explored the lived experiences of 12 adults with disabilities, including intellectual disability and developmental disabilities, with a…

Increasingly, interventions are being developed and tested with families of color, including Latino families of transition-aged youth with autism. However, without culturally responsive measures, it is difficult to determine whether an intervention is effective. The purpose of this study was to improve the cultural responsiveness of measures…

Medical students with disabilities constitute 7.6% of allopathic (MD) and 4.3% of osteopathic (DO) programs, and they are entitled to reasonable accommodation, per the Americans with Disabilities Act. However, research has demonstrated that disabled medical students often encounter barriers when accessing accommodations. In response to these…

Historically caregivers of individuals with disabilities have engaged in individual (for their children) and systemic advocacy (for others). Although it is widely known that caregivers advocate for their school-aged children with disabilities, little is known about how caregivers who have infants and toddlers (birth to three years old) with delays…

As the United States' first disability-specific leadership academy in state government, the Leadership Academy for Excellence in Disability Services is a year-long competency-based training experience designed for employees who manage programs that impact the lives of Tennesseans with intellectual and developmental disabilities and their families.…

Britney Spears's 2020 testimony about her 13-year conservatorship highlighted ethical concerns surrounding surrogate decision making. Social workers engage with families and clients in conservatorship/guardianship arrangements. However, social work educational programs spend little time preparing students for surrogate decision making and…

Disability disclosure is a complex, ongoing process involves navigating medical, legal, educational, economic, and employment systems. Disclosure decision making occurs for all disabled individuals regardless of how apparent their disability is to others. Professionals working in disability resource positions, who identify as disabled, navigate…

The history of self-advocacy in England has not been recorded, other than the stories of individuals and of some individual groups. We, therefore, decided to interview some leaders of the self-advocacy movement and some people who were allies and supporters. Three researchers, two self-advocates and one academic, interviewed 11 self-advocate…

Influenced by revolutionary mothering, activists of color, and radical feminists, this article explores Neurodivergent families through the lens of Disability Critical Race Theory. As a parent of an Autistic child, I embark on redefining my role by integrating art and design into community advocacy for Autistic communities. I challenge unjust…

Background: The measurement of equality is often difficult for groups who are weakly defined or poorly represented in official datasets. Social statistics are an essential component in rights recognition and advocacy because they make protected groups of persons visible and reveal the extent of their inequalities in comparison with population…

Families who have children with delays or disabilities are often expected to become advocates for their children. Despite this inherent expectation, there is limited research available focused on advocacy during the early years (birth to three). The purpose of this study was to use qualitative inquiry, specifically semi-structured interviews, to…

As autistic individuals grow into adulthood, they are much more likely to experience a need for employment-related skills, with research on these skills lacking relative to child-focused research. Accordingly, this dissertation examined existing literature on employment-related skill development and based on community consultation, developed…