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Pattison, Ellen; Ure, Alexandra; Mittiga, Sharon R.; Williams, Katrina; Freeman, Nerelie C. – Journal of Autism and Developmental Disorders, 2022
This review aimed to assess the quality and content of recommendations for delivering an autism diagnosis, published internationally within clinical practice guidelines. Seventeen relevant guidelines were identified. When methodological information was provided, recommendations for feedback were predominantly formed through consensus.…
Descriptors: Feedback (Response), Clinical Diagnosis, Autism, Guidelines
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Huang, Yunhe; Hwang, Ye In; Arnold, Samuel R. C.; Lawson, Lauren P.; Richdale, Amanda L.; Trollor, Julian N. – Journal of Autism and Developmental Disorders, 2022
As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all…
Descriptors: Adults, Autism Spectrum Disorders, Clinical Diagnosis, Disclosure
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Almog, Nitsan; Kassel, Orit; Levy, Nili; Gabai, Tamir – Journal of Autism and Developmental Disorders, 2023
The diagnosis of autism is often delivered solely to the parents, a practice that forces them to confront the dilemma of whether, when and how they should disclose it to the child. The present study seeks to probe deeper into the phenomenon of diagnosis disclosure and lead to a clearer understanding of the dilemmas parents? face. This article…
Descriptors: Clinical Diagnosis, Autism Spectrum Disorders, Parent Attitudes, Disclosure
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Mudit Kapoor; Mayanka Ambade; Shamika Ravi; S. V. Subramanian – Journal of Autism and Developmental Disorders, 2024
Intellectual disability in India is substantially under-reported, especially amongst females. This study quantifies the prevalence and gender bias in household reporting of intellectual disability by estimating the age-and-gender specific prevalence of the intellectually disabled by education, Socio-Demographic Index (SDI) score, place of…
Descriptors: Foreign Countries, Age Differences, Gender Differences, Intellectual Disability
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Anderberg, Emily; South, Mikle – Journal of Autism and Developmental Disorders, 2021
Receiving a diagnosis of autism for their child can be a pivotal moment for parents, yet there is little research about how providers can predict parent reactions and adjust their feedback. We investigated factors related to parent reactions during the disclosure session using interviews with providers (n = 6), a parent focus group (n = 10), and a…
Descriptors: Parent Attitudes, Autism, Pervasive Developmental Disorders, Clinical Diagnosis
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Lim, Alliyza; Brewer, Neil; Young, Robyn L. – Journal of Autism and Developmental Disorders, 2023
Reports of cybercrime being committed by people on the autism spectrum often imply that autism may be more prevalent among cybercriminals than the general population, although this remains unproven. In an online survey of 302 participants, we found that autistic individuals (n = 25) were more likely to report engagement in cybercrime than…
Descriptors: Crime, Internet, Information Security, Autism Spectrum Disorders
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O'Connor, Cliodhna; Burke, Judith; Rooney, Brendan – Journal of Autism and Developmental Disorders, 2020
Adults with autism spectrum disorder (ASD) often experience social marginalisation. This study uses a vignette-based design to clarify whether diagnostic disclosure affects social marginalisation in workplace contexts. It investigates two potential mediators of this relationship: affective response to and theory of mind for people with ASD.…
Descriptors: Clinical Diagnosis, Correlation, Adults, Autism
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Austin, Jillian E.; Galijot, Ratka; Davies, W. Hobart – Journal of Autism and Developmental Disorders, 2018
The relative effects of different autism disclosure methods on the perceptions of a mother-child dyad were investigated. Using three conditions, disclosure card, disclosure bracelet, and no disclosure, U.S. community parents (N = 383) were asked 18 questions about their perceptions of the dyad. An ANOVA revealed significant protection from stigma…
Descriptors: Disclosure, Autism, Statistical Analysis, Social Bias
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Rubenstein, Eric; Edmondson Pretzel, Rebecca; Windham, Gayle C.; Schieve, Laura A.; Wiggins, Lisa D.; DiGuiseppi, Carolyn; Olshan, Andrew F.; Howard, Annie G.; Pence, Brian W.; Young, Lisa; Daniels, Julie – Journal of Autism and Developmental Disorders, 2017
Autism spectrum disorder (ASD) diagnosis relies on parent-reported and clinician-observed instruments. Sometimes, results between these instruments disagree. The broader autism phenotype (BAP) in parent-reporters may be associated with discordance. Study to Explore Early Development data (N = 712) were used to address whether mothers with BAP and…
Descriptors: Autism, Pervasive Developmental Disorders, Genetics, Mothers
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Austin, Jillian E.; Zinke, Vanessa L.; Davies, W. Hobart – Journal of Autism and Developmental Disorders, 2016
Parents of children with autism often report feeling judged and are increasingly using disclosure cards to reduce negative perceptions. However, no empirical research has been conducted on the effectiveness of these cards. The present study used vignettes of a parent-child interaction in which the child was misbehaving and investigated the…
Descriptors: Autism, Parents, Vignettes, Parent Child Relationship
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Cai, Ru Ying; Richdale, Amanda L. – Journal of Autism and Developmental Disorders, 2016
Little research directly examines the needs of post-secondary students with ASD. The experiences and support needs of 23 students with ASD enrolled in two universities and four colleges, and 15 family members were explored in 15 semi-structured focus groups. Thematic analysis identified five themes: core ASD features, co-morbid conditions,…
Descriptors: Educational Experience, Special Needs Students, Pervasive Developmental Disorders, Autism
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Van Hees, Valérie; Moyson, Tinneke; Roeyers, Herbert – Journal of Autism and Developmental Disorders, 2015
The transition into higher education constitutes a precarious life stage for students with autism spectrum disorder (ASD). Research on how students with ASD navigate college life is needed for the development of adequate support. This study investigated the challenges and support needs of 23 students with ASD in higher education through…
Descriptors: Higher Education, Student Experience, Pervasive Developmental Disorders, Autism