Obtaining ethical approval for my PhD research with adults with learning (intellectual) disabilities presented an unexpected challenge of learning to work with two sets of guidance: the United Nations Convention on the Rights of Persons with Disabilities (CRPD), and the Ethical Conduct in Human Research and Related Activities Regulations (HRR).…

Obtaining informed consent is the foundation of ethics in clinical research involving human participants. Individuals who provide informed consent acknowledge they understand all aspects of the research including the nature of the study, the risks and benefits of participation, the participants' rights, study procedures, research duration,…

Background: While qualitative research on intellectual disability is on the rise, researchers have frequently reported that their methods bring methodological and ethical challenges. The authors advance shadowing as an alternative method to respond to these concerns. Method: The authors draw on their experiences with shadowing on the basis of two…