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ERIC Number: EJ1426561
Record Type: Journal
Publication Date: 2024-Jun
Pages: 15
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0162-3257
EISSN: EISSN-1573-3432
Available Date: N/A
A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies
Sarah S. Mire; Dieu M. Truong; Georgina J. Sakyi; Mycah L. Ayala-Brittain; Jelisa D. Boykin; Christian M. Stewart; Fre'Dasia Daniels; Brenda Duran; Scarlett Gardner; Alexandra M. Barth; Georgette Richardson; Shannon L. McKee
Journal of Autism and Developmental Disorders, v54 n6 p2307-2321 2024
Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers' strategies for recruiting and retaining SCLD families of children with NDD, published between 1993 and 2018. One hundred twenty-six articles were included, and study samples were categorized as "High SCLD" and "Low SCLD". Chi-square tests of independence were used to determine associations between sample composition (i.e., High/Low SCLD sample) and study characteristics reported. Significant associations were found between sample composition and studies that explicitly stated intention to recruit SCLD families, X[superscript 2](1) = 12.70, p < 0.001, Phi = 0.38 (moderate); and for studies that reported the following participant characteristics: language, X[superscript 2](1) = 29.58, p < 0.001, Phi = 0.48 (moderate-to-large); and race/ethnicity + SES + language, X[superscript 2](1) = 19.26, p < 0.001, Phi = 0.39 (moderate). However, associations were not found between recruitment and retention approaches and whether studies included High SCLD or Low SCLD samples. Further study of NDD researchers' recruitment and retention approaches that successfully include SCLD families is needed.
Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Publication Type: Journal Articles; Information Analyses; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A