Background: Researching the perspectives of people with profound intellectual and multiple disabilities (PIMD) presents complexity and uncertainty. Traditional research often prioritises rational, objectivist methods, which may overlook this complexity. Aims: This study aimed to develop methodological cues for researchers studying the perspectives…

Background: Knowledge about the quality of assessment methods used in the support of people with profound intellectual and multiple disabilities (PIMD) is scarce. This study aimed to provide an overview of the assessment methods used in practice and to examine whether these instruments were studied for their psychometric properties for people with…

The Rochford Review heralded new arrangements for statutory assessment for children with SLD and PMLD working below the national curriculum standard. New assessment arrangements, the pre-key stage standards and the engagement model, relate to two groups of pupils: pupils 'not yet engaged' and pupils 'engaged' in subject-specific study. This…

Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…

Communication assessment of people with profound intellectual and multiple disabilities (PIMD) has seldom been investigated. Here, we explore approaches and decision making in undertaking communication assessments in this group of people. A questionnaire was sent to UK practitioners. The questionnaire elicited information about assessment…

The general purpose of the present study is to determine the relationship between direct and indirect preference assessments of individuals with severe and multiple disabilities (SMD) and the relationship between the direct preference assessments (single-stimulus, paired-stimulus, and multiple-stimulus) as applied to individuals with SMD, and to…

In the support of individuals with profound intellectual and multiple disabilities (PIMD), assessing the level of alertness is a recurring issue for parents and other direct support persons. Although observations show clear advantages above and beyond other assessment methods, there are problems related to this method as well. Subjectivity of…

Background: The supports paradigm has shifted focus from assessing competence and deficits among people with disabilities to identifying supports needed to live meaningful and productive lives in inclusive settings. Consequently, a rigorous and robust system is required that is capable of accurately determining the type and intensity of support…

In a controlled multiple case design study, the development of a therapeutic relationship and its role in affect regulation were studied in 6 children with visual disabilities, severe intellectual disabilities, severe challenging behavior, and prolonged social deprivation. In the 1st phase, children had sessions with an experimental therapist…

The aim of this study was to gather information on the tools used by special education teachers for the assessment of severely intellectually disabled students (SID), preparing an individual education plan, and about the methodology used for monitoring their learning progress. The survey included all Finnish special education teachers working with…

Background: In a recent study, we constructed an item pool that contains items on the quality of life (QOL) and related aspects of support of people with profound multiple disabilities (PMD). In the present study, a panel of experts assessed the content and the structure of this item pool in order to enhance its validity and usefulness. Method: A…

This study of the haptic exploratory strategies used by nine children with visual impairments and additional disabilities when interacting with portable and freely manipulable objects found that a broader approach to assessment and analysis is required than is used with typically developing children. An "adaptive-tasks" approach is proposed as a…

This paper provides a brief summary of a workshop held at the Wolfson Centre, London, England, on assessment of children with multiple disabilities. In addition, the paper offers guidelines for good assessment practice, emphasizing the need for assessment to be an ongoing, multidisciplinary process. (JDD)

This paper introduces an alternative to the conventional "method-oriented" approach to evaluation of interventions with people having profound/multiple intellectual disabilities (PMPID). The proposed approach uses the principles of theory-driven evaluation, based on a program theory which specifies what must be done to achieve the desired goals,…

A study involving 114 educators of students with profound and multiple learning difficulties, interviews with 20 head teachers, and observation in four British schools, found student assessment was largely informal, Individualized Education Programs were often lacking in detail, and about one-third of teachers had no special education…