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Direct linkNieuwenhuijse, Appolonia M.; Willems, Dick L.; van Goudoever, Johannes B.; Echteld, Michael A.; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2019
Background: The objective of this study was to provide an overview of concepts, methods of assessment and assessors in empirical studies on quality of life (QoL) of persons with Profound Intellectual and Multiple Disabilities (PIMD). Method: A narrative literature review was conducted by searching electronic databases until December 2016, and the…
Descriptors: Quality of Life, Severe Intellectual Disability, Multiple Disabilities, Evaluation Methods
Nieuwenhuijse, A. M.; Willems, D. L.; van Goudoever, J. B.; Olsman, E. – International Journal of Developmental Disabilities, 2022
Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Caregiver Attitudes, Caregivers
Petry, Katja; Maes, Bea; Vlaskamp, Carla – Research in Developmental Disabilities: A Multidisciplinary Journal, 2009
Because of a shortage of valid instruments to measure the QOL of people with profound multiple disabilities (PMD), the QOL-PMD was developed. In the present study, possibilities for item reduction as well as the psychometric properties of the questionnaire were examined. One hundred and forty-seven informants of people with PMD participated in the…
Descriptors: Multiple Disabilities, Quality of Life, Construct Validity, Questionnaires
Riches, Vivienne C.; Parmenter, Trevor R.; Llewellyn, Gwynnyth; Hindmarsh, Gabrielle; Chan, Jeff – Journal of Applied Research in Intellectual Disabilities, 2009
Background: The supports paradigm has shifted focus from assessing competence and deficits among people with disabilities to identifying supports needed to live meaningful and productive lives in inclusive settings. Consequently, a rigorous and robust system is required that is capable of accurately determining the type and intensity of support…
Descriptors: Multiple Disabilities, Mental Retardation, Well Being, Classification
Petry, K.; Maes, B.; Vlaskamp, C. – Journal of Intellectual Disability Research, 2007
Background: In a recent study, we constructed an item pool that contains items on the quality of life (QOL) and related aspects of support of people with profound multiple disabilities (PMD). In the present study, a panel of experts assessed the content and the structure of this item pool in order to enhance its validity and usefulness. Method: A…
Descriptors: Foreign Countries, Questionnaires, Multiple Disabilities, Quality of Life
Lyons, G. – Journal of Intellectual Disability Research, 2005
Background: Assessing and measuring subjective quality of life (QOL) for individuals with profound multiple disabilities (PMD) remain amongst the most difficult challenges for theorists and practitioners in the field. The usual approaches using proxy reporting by familiar others have been demonstrated to be of questionable reliability and validity…
Descriptors: Test Validity, Quality of Life, Qualitative Research, Life Satisfaction
