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Rivard, Mélina; Mello, Catherine; Mercier, Céline; Lefebvre, Christine; Millau, Marie; Morin, Marjorie; Morin, Diane; Abouzeid, Nadia; Chatenoud, Céline – Journal of Applied Research in Intellectual Disabilities, 2020
Background: ETAP-1 was created to evaluate the quality of services trajectory from families' perspective. The items of ETAP-1 were developed from previous studies on integrated care, existing quality assessments, and consultations with families and experts in evaluation and in autism spectrum disorder (ASD). Method: The questionnaire was completed…
Descriptors: Autism, Pervasive Developmental Disorders, Questionnaires, Test Construction
Albuquerque, Cristina P. – Journal of Applied Research in Intellectual Disabilities, 2012
Background: This study analyzes the psychometric properties of the Portuguese version of the Quality of Life Questionnaire (QOL-Q; Quality of Life Questionnaire Manual--1993 Manual and 2004 Revision. 2004, IDS Publishing Company, Worthington, OH; Schalock & Keith 2004). Method: The analysis of the factorial structure was carried out on a sample of…
Descriptors: Life Satisfaction, Mental Retardation, Quality of Life, Factor Structure
Barelds, Anna; van de Goor, Ien; van Heck, Guus; Schols, Jos – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Care and service trajectories for people with intellectual disabilities are routes within the health care delivery system that consist of all the steps that people with intellectual disability and their families have to take in order to realize needed care and services. In contrast to the growing body of system-orientated knowledge…
Descriptors: Disabilities, Mental Retardation, Focus Groups, Interviews