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Gwendoline Desquenne Godfrey; Naomi Downes; Emilie Cappe – Journal of Autism and Developmental Disorders, 2024
This article aims to review the literature on family functioning in the field of autism. The search was conducted in August 2021 in PubMed, PsycINFO, and PubPsy and sixty-two articles were included. Studies were published in English between 1980 and 2021 and provided quantitative data from validated measures of family functioning in families with…
Descriptors: Family Environment, Family Relationship, Children, Autism Spectrum Disorders
Chiara Fante; Raffaele De Luca Picione; Barbara Dioni; Tommaso Manari; Cinzia Raffin; Francesca Capelli; Christian Franceschini; Vittorio Lenzo; Alessandro Musetti – Journal of Autism and Developmental Disorders, 2025
The presence of a child with Autism Spectrum Disorder (ASD) in the family can have a negative impact on parental Quality of Life (QoL), but evidence on how treatments for children with ASD can affect parental QoL is currently limited. In this qualitative study, we develop a semi-structured interview in order to investigate the impact of ASD on the…
Descriptors: Autism Spectrum Disorders, Children, Parents, Quality of Life
C. Sinha; L. Lecavalier; C. R. Johnson; C. Taylor; A. Mulligan; D. Buckley; M. L. Alder; L. Scahill – Journal of Autism and Developmental Disorders, 2024
Toward the development of a new parent-rating for insomnia, this multi-site qualitative study explored sleep problems and related impacts in children with autism spectrum disorder (ASD) and their families. To ensure content validity of the measure, we conducted six focus groups with caregivers (N = 25) of 24 children (age 3 to 18 years) with ASD.…
Descriptors: Sleep, Children, Adolescents, Autism Spectrum Disorders
Michelle Menezes; Jim Soland; Micah O. Mazurek – Journal of Autism and Developmental Disorders, 2024
The capacity of families with autistic children to demonstrate resilience is a notable strength that has received little attention in the literature. A potential predictor of family resilience in households with autistic youth is neighborhood support. This study examined the relationship between neighborhood support and family resilience in…
Descriptors: Family Environment, Resilience (Psychology), Neighborhoods, Social Support Groups
Durán-Pacheco, Gonzalo; Silkey, Mariabeth; Johnson, Michelle; Liu, Chuang; Clinch, Susanne; Law, Kiely; Loss, Georg – Journal of Autism and Developmental Disorders, 2023
To better understand the impact of children's autism spectrum disorder (ASD) severity on families, we evaluated pathways through which ASD severity affected child sleep quality, caregiver strain, and caregiver sleep quality. In a cross-sectional analysis through the U.S.-wide Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort.…
Descriptors: Autism Spectrum Disorders, Children, Adolescents, Severity (of Disability)
Ya-Chih Chang; Stephanie Shire; Wendy Shih; Connie Kasari – Journal of Autism and Developmental Disorders, 2024
Due to core challenges in social communication experienced by many young children with autism, children on the spectrum who are also dual language learners (DLLs) may benefit from developmentally-appropriate language supports in school settings. The current study examined whether home language status moderated the effect of a play-based…
Descriptors: Autism Spectrum Disorders, Bilingualism, Bilingual Students, Play
Lindsey Sneed; Ryan Taylor; Ian Cook; Michelle Befi; Brianna Fitchett; Doreen Samelson; Vincent Bemmel – Journal of Autism and Developmental Disorders, 2025
Purpose: Wellbeing refers to a person's overall happiness and satisfaction with life. Wellbeing for people with Intellectual and Developmental Disabilities (I/DD) and their families is historically significantly lower compared to the general population. It is important in the context of behavioral health treatment to not only measure the…
Descriptors: Psychometrics, Measures (Individuals), Well Being, Intellectual Disability
Baten, Elke; Vlaeminck, Fieke; Mués, Marjolein; Valcke, Martin; Desoete, Annemie; Warreyn, Petra – Journal of Autism and Developmental Disorders, 2023
Using the Opportunity-Propensity Model (Byrnes in Dev Rev 56:100911, 2020; Byrnes & Miller in Contemp Educ Psychol 32(4);599-629, 2007), the current study investigated which factors helped predicting children's home learning experiences during the COVID-19 pandemic, thereby examining differences between children with (DD; n = 779) and without…
Descriptors: Learning Experience, COVID-19, Pandemics, Developmental Disabilities
Cyr Brisini, Kellie St.; Tian, Xi; Solomon, Denise – Journal of Autism and Developmental Disorders, 2023
This study describes parents' daily "highs" and "lows" during their child's transition to school for the first time and examines how those experiences relate to turbulence in the parents' relationship. 106 parents (53 couples) rated their relationship qualities at pre-test and post-test and described "high" and…
Descriptors: Autism Spectrum Disorders, Students with Disabilities, Marital Instability, Family Environment
Douglas, Sarah N.; Meadan, Hedda; Biggs, Elizabeth E.; Bagawan, Atikah; Terol, Adriana Kaori – Journal of Autism and Developmental Disorders, 2023
Family-centered capacity-building practices have been shown to benefit children and families. However, limited research explores these practices for children who use augmentative and alternative communication. This study explored an intervention to teach family members to implement an Aided Language Modeling (ALM) strategy across natural…
Descriptors: Autism Spectrum Disorders, Augmentative and Alternative Communication, Family Involvement, Intervention
Meral, Bekir Fatih – Journal of Autism and Developmental Disorders, 2022
The COVID-19 pandemic, the infection caused by the novel coronavirus detected in December 2019 by World Health Organization (WHO), has detrimentally impacted human life in a variety of areas. Many concepts including outbreak, pandemic, and quarantine have been an inseparable part of our lives. This kind of dialectic change naturally affects…
Descriptors: Parent Attitudes, Children, Autism, Pervasive Developmental Disorders
Marriott, Elise; Stacey, James; Hewitt, Olivia Mary; Verkuijl, Nienke E. – Journal of Autism and Developmental Disorders, 2022
Despite autism being highly heritable, this study is the first to investigate the experiences of parents of autistic children who have significant autistic traits themselves. Eight parents of autistic children with significant autistic traits themselves were interviewed regarding their parenting experiences. In line with what has previously been…
Descriptors: Parents, Autism, Pervasive Developmental Disorders, Parent Child Relationship
Hagar Binoun Chaki; Yifat Faran – Journal of Autism and Developmental Disorders, 2025
Autism spectrum disorders (ASD) are neurodevelopmental disorders characterized by difficulties in communication and social-emotional interaction. It is associated with an increase of parental stress and poor family functioning, both of which are harmful for a child's functioning and adaptive behavior. An important source of support to parents are…
Descriptors: Autism Spectrum Disorders, Ethnic Groups, Grandparents, Behavior Problems
Kristen T. MacKenzie; Mario J. Crown; Jessie B. Northrup; Elizabeth Rutenberg; Amy G. Hartman; Carla A. Mazefsky – Journal of Autism and Developmental Disorders, 2025
The purpose of this project was to investigate potential correlates of family life impairment in families of young autistic children. This project incorporated measures of specific child and parent challenges in addition to a commonly used unidimensional measure of autism characteristics. In this way, we could assess whether such challenges…
Descriptors: Family Environment, Young Children, Autism Spectrum Disorders, Barriers
Kazak, Anne; Ramirez, Alejandra Perez; Scialla, Michele A.; Alderfer, Melissa A.; Sewell-Roberts, Carrie; Treadwell-Deering, Diane – Journal of Autism and Developmental Disorders, 2023
Recognizing the multifaceted and chronic demands on families of children with Autism Spectrum Disorder (ASD) and challenges in providing care matched to need, we adapted the Psychosocial Assessment Tool (PAT), a brief caregiver-report screener of family psychosocial risk, for this population. Study methods included literature review, focus groups…
Descriptors: Autism Spectrum Disorders, Caregiver Attitudes, Family Environment, Symptoms (Individual Disorders)