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Deb, Shoumitro; Limbu, Bharati; Nancarrow, Tom; Gerrard, David; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Overprescribing of off-licence psychotropic medications, particularly antipsychotics, for challenging behaviours in people with intellectual disabilities without a psychiatric disorder is a significant public health concern. In the United Kingdom, the National Health Service England launched an initiative in 2016, 'STopping…
Descriptors: Foreign Countries, Psychiatry, Experience, Adults
Jennifer Christianson-Barker; Arielle Lomness; Nour Youssef; Dina Yaghi; Florence Ng; Laura Hockman; Rachel Mills; Rachelle Hole – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Canadians with intellectual disabilities experience barriers in accessing federal government services and programmes. Evolving from established models of patient navigation, service navigation has emerged as a potential way to address systematic barriers. Methods: A scoping review was conducted with a search strategy implemented across…
Descriptors: Navigation, Accessibility (for Disabled), Intellectual Disability, Federal Programs
Ariana M. Mastrogiannis; Caren Steinway; Telmo C. Santos; Jack Chen; John Berens; Thomas Davis; Michelle Cornacchia; Jason Woodward; Ilka Riddle; Brittany Spicer; Charmaine Wright; Lee A. Lindquist; Sophia Jan – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Needs
Chicas, Vanessa E.; Steinway, Caren; Chen, Jack; Schwartz, Matthew C.; Wright, Charmaine; Cornacchia, Michelle; Davis, Thomas W.; Berens, John C.; Riddle, Ilka; Woodward, Jason F.; Jan, Sophia – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Long Range Planning
McLean, Kiley J.; Hoekstra, Allison M.; Bishop, Lauren – Journal of Applied Research in Intellectual Disabilities, 2021
Emerging research tests the impact of United States Medicaid home and community-based (HCBS) waiver policy on outcomes for people with intellectual and developmental disabilities; however, this body of work has yet to be synthesized. We conducted a scoping review to establish what is known about the impact of Medicaid HCBS policy on the lives of…
Descriptors: Federal Programs, Health Services, Community Services, Intellectual Disability

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