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Direct linkKatherine Flannigan; Devon C. Edwards; Lisa Murphy; Jacqueline Pei – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Individuals with fetal alcohol spectrum disorder (FASD) experience complex needs that often necessitate support from multiple systems. There is growing evidence that people with FASD may benefit from integrated service delivery (ISD), but little is known about ISD elements and processes for this population. Method: Using a multi-method…
Descriptors: Fetal Alcohol Syndrome, Delivery Systems, Rural Areas, Affordances
Challenges and Strengths Experienced by Fetal Alcohol Spectrum Disorder Diagnostic Clinics in Canada
Kelly D. Harding; Colleen Burns; Christine Lafontaine; Andrew Wrath; Alicia Groom; Katherine Flannigan; Kathy Unsworth; Audrey McFarlane – Journal of Intellectual & Developmental Disability, 2024
Background: The Canadian fetal alcohol spectrum disorder (FASD) diagnostic guideline provides clinicians with the process and procedure to reach an accurate diagnosis. However, organisational structure, culture, and resource utilisation vary. The objectives of this study were to identify the key challenges and strengths of successful FASD…
Descriptors: Foreign Countries, Fetal Alcohol Syndrome, Clinical Diagnosis, Barriers
Aspler, John; Bogossian, Aline; Racine, Eric – Journal of Intellectual & Developmental Disability, 2022
Background: People with fetal alcohol spectrum disorder (FASD) and women who drink alcohol while pregnant can experience stigma, possibly exacerbated by stereotyped media portrayals. Method: To understand experiences of FASD stakeholders and reactions to news coverage, we conducted twelve focus groups across three categories: (1) people with FASD;…
Descriptors: Pregnancy, Fetal Alcohol Syndrome, Drinking, Social Bias
Pei, Jacqueline; Reid-Westoby, Caroline; Siddiqua, Ayesha; Elshamy, Yomna; Rorem, Devyn; Bennett, Teresa; Birken, Catherine; Coplan, Rob; Duku, Eric; Ferro, Mark A.; Forer, Barry; Georgiades, Stelios; Gorter, Jan Willem; Guhn, Martin; Maguire, Jonathon; Manson, Heather; Santos, Rob; Brownell, Marni; Janus, Magdalena – Journal of Autism and Developmental Disorders, 2021
The prevalence of Fetal Alcohol Spectrum Disorder (FASD) may be underestimated as it can be difficult to diagnose in early childhood possibly reflecting unique developmental trajectories relative to other Neurodevelopmental Disabilities (NDDs). Using data collected via the Early Development Instrument (EDI) between 2010 and 2015, we examined the…
Descriptors: Fetal Alcohol Syndrome, Kindergarten, Young Children, Incidence
Kapasi, Aamena; Pei, Jacqueline; Kryska, Kathryn; Joly, Vannesa; Gill, Kamaldeep; Thompson-Hodgetts, Sandra; McLachlan, Kaitlyn; Andrew, Gail; Rasmussen, Carmen – Journal of Occupational Therapy, Schools & Early Intervention, 2021
Adolescents with Fetal Alcohol Spectrum Disorder (FASD) experience a range of cognitive, behavioral, and physical difficulties, including difficulties with self-regulation. We investigated self-regulation strategy use in adolescents with FASD who completed a self-regulation intervention program. The intervention was an adapted version of the Alert…
Descriptors: Adolescents, Fetal Alcohol Syndrome, Self Management, Self Control
Redquest, Brianne; McKenzie, Lachina; Lake, Johanna; Fung, Kenneth; Lunsky, Yona – Journal of Mental Health Research in Intellectual Disabilities, 2022
Introduction: Caregivers of autistic children and caregivers of children with fetal alcohol spectrum disorder (FASD) experience considerable stress. However, what is unique or similar across these groups remains understudied. This study explored how female caregivers of children with FASD who registered to participate in a caregiver focused mental…
Descriptors: Demography, Autism, Caregivers, Fetal Alcohol Syndrome
Tremblay, Melissa; Mastrangelo, Tracy; Pei, Jacqueline – Alberta Journal of Educational Research, 2021
Schools across the province of Alberta are increasingly diverse in terms of student backgrounds, circumstances, and needs (Alberta Education, 2017). In order to respond to the needs of a diverse student population, many schools are providing supports targeted to children and youth identified as being at risk for poor outcomes. The Wellness,…
Descriptors: Foreign Countries, Capacity Building, Wellness, Resilience (Psychology)
Temple, Valerie; Cook, Jocelynn L.; Unsworth, Kathy; Roberts, Nicole – Journal of Mental Health Research in Intellectual Disabilities, 2021
Introduction: There is significant symptom overlap between fetal alcohol spectrum disorder (FASD), which results from prenatal alcohol exposure (PAE), and autism spectrum disorder (ASD). There is also limited research regarding the comorbidity of these disorders. Method: Thirty-nine individuals with ASD and PAE (ASD+PAE) aged 3 to 30 years were…
Descriptors: Prenatal Influences, Drinking, Fetal Alcohol Syndrome, Autism
Makela, Marnie L.; Pei, Jacqueline R.; Kerns, Kimberly A.; MacSween, Jennifer V.; Kapasi, Aamena; Rasmussen, Carmen – Journal of Special Education, 2019
Metacognitive training is an emerging cognitive intervention for children with fetal alcohol spectrum disorder (FASD) that teaches children to think about their thinking and use strategies to improve learning and regulation. We investigated how children with FASD acquired metacognitive strategies during a computerized intervention delivered in a…
Descriptors: Fetal Alcohol Syndrome, Metacognition, Learning Strategies, Intervention
Bergstrom, Veronica N. Z.; O'Brien-Langer, Anna; Marsh, Rebeccah – Journal of Occupational Therapy, Schools & Early Intervention, 2019
How are mental health practitioners using Snoezelen rooms with children with fetal alcohol spectrum disorder (FASD) within a community mental health setting? Using purposive sampling, we collected information from seven practitioners on how they currently use Snoezelen rooms to support children with FASD and what evidence they believe is needed to…
Descriptors: Fetal Alcohol Syndrome, Sensory Experience, Perceptual Development, Self Control
Spruyt, Karen; Ipsiroglu, Osman; Stockler, Sylvia; Reynolds, James N. – International Journal of Developmental Disabilities, 2018
Objective: Sleep complaints are clinically expected in children exposed to alcohol during pregnancy. We aim to reveal patterns of association among sleep--wake behaviors that are challenging in the life of children with fetal alcohol spectrum disorders (FASD). Methods: Through text-mining analyses, we numericized the transcripts of 59 caregiver's…
Descriptors: Sleep, Drinking, Pregnancy, Correlation
Opini, Bathseba – Exceptionality Education International, 2019
Fetal alcohol spectrum disorder (FASD) is a significant cause of cognitive and developmental disability among children in Canada, with accompanying lifelong risks to independent living. Previous studies have called for improved home-school collaboration to support children with FASD, but barriers remain for parents seeking collaborative…
Descriptors: Inclusion, Fetal Alcohol Syndrome, Special Needs Students, Students with Disabilities
Coons, Kelly D.; Watson, Shelley L.; Yantzi, Nicole M.; Schinke, Robert J. – Journal of Intellectual & Developmental Disability, 2018
Background: Our aim in this paper is to build upon the experience of family adaptation and to describe one unique stressor experienced by adoptive parents of children with fetal alcohol spectrum disorder (FASD) that may hinder successful family adaptation. Method: Fifty-one adoptive parents of children with FASD from 36 families in Ontario,…
Descriptors: Child Rearing, Fetal Alcohol Syndrome, Clinical Diagnosis, Family Relationship
Coons, Kelly D.; Watson, Shelley L.; Schinke, Robert J.; Yantzi, Nicole M. – Journal of Intellectual & Developmental Disability, 2016
Background: There is limited research investigating the lived experiences of parents raising children with fetal alcohol spectrum disorder (FASD). The aim of this paper is to use qualitative analysis to identify how parents have adapted to the experience of raising their child with FASD. Method: Eighty-four parents and caregivers of children with…
Descriptors: Fetal Alcohol Syndrome, Child Rearing, Family Environment, Adjustment (to Environment)
Popova, Svetlana; Lange, Shannon; Burd, Larry; Nam, Seungree; Rehm, Jürgen – Exceptionality, 2016
The current study aimed to estimate the cost associated with special education among children (5 to 14 years) with Fetal Alcohol Spectrum Disorder (FASD) in elementary and middle school by sex, age group, and province and territory in Canada. It was estimated that there were 6,520 students with FASD receiving special education in Canada in…
Descriptors: Fetal Alcohol Syndrome, Special Education, Children, Elementary School Students
