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Devender R. Banda; Stacy L. Carter; The Nguyen – International Journal of Developmental Disabilities, 2024
Parents have long been concerned with the transition to adulthood of their children with intellectual and developmental disability (IDD) particularly with financial issues. The purpose of this study was to explore the financial concerns of mothers of adults with IDD. Five mothers of adults with IDD participated in a focus group to share their…
Descriptors: Mothers, Caregivers, Intellectual Disability, Developmental Disabilities
Gadd, Teresa – British Journal of Learning Disabilities, 2020
Background: Respite supports are highly valued by persons with disabilities and their families/carers. In Ireland, there has been regular commentary in relation to a lack of respite services, with users and other stakeholders reporting limited access, inequity of provision, and long waiting lists for support. Materials and Methods: Much of the…
Descriptors: Respite Care, Intellectual Disability, Adults, Foreign Countries
Dickinson, Danielle; Hutchinson, Nick – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Theatre companies to show positive capabilities and identities of people with intellectual disabilities have been established. Existing research focuses upon sole theatre performances and rarely includes the impacts on those in the immediate and wider contexts of people with intellectual disabilities. Methods: The impacts of a theatre…
Descriptors: Theater Arts, Intellectual Disability, Self Concept, Individual Development
Riches, Tanya N.; O'Brien, Patricia M. – British Journal of Learning Disabilities, 2017
Background: This article presents a case study of the Centre for Disability Studies' Inclusive Research Network. The network is a dynamic group of around fifteen people who have intellectual and other disabilities, support workers and university researchers. Methods: The study was based upon an evaluation of the group's research practice, as…
Descriptors: Intellectual Disability, Case Studies, Developmental Disabilities, Focus Groups
Phadraig, Caoimhin Mac Giolla; Griffiths, Colin; McCallion, Philip; McCarron, Mary; Nunn, June – Journal of Intellectual Disabilities, 2019
A better understanding of how communication-based behaviour supports are applied with adults with intellectual disabilities may reduce reliance on restrictive practices such as holding, sedation and anaesthesia in dentistry. In this study, we explore how communication is used by dentists who provide treatment for adults with intellectual…
Descriptors: Dentistry, Intellectual Disability, Decision Making, Adults
Collings, Susan; Dew, Angela; Dowse, Leanne – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Planners will engage with people with cognitive disability and complex support needs in the Australian National Disability Insurance Scheme, but the specific skills needed to build sustainable plans with this group are not yet known. Method: A qualitative study was conducted to explore the barriers and facilitators to planning with…
Descriptors: Intellectual Disability, Qualitative Research, Focus Groups, Barriers
Clark, Lauren; Pett, Marjorie A.; Cardell, Elizabeth M.; Guo, Jia-Wen; Johnson, Erin – Intellectual and Developmental Disabilities, 2017
Using principles of community-based participatory research we developed a new theory-based measure of health-related quality of life (HRQOL) for individuals with intellectual disability (ID). We recruited adults with ID (n = 129) to take part in interviews and review successive versions of HRQOL items. Critical input about content and…
Descriptors: Intellectual Disability, Quality of Life, Adults, Interviews
Strnadová, Iva; Johnson, Kelley; Walmsley, Jan – Journal of Applied Research in Intellectual Disabilities, 2018
Background: A policy commitment to social inclusion has brought about some positive changes in the lives of people with intellectual disabilities; yet many also continue to experience social isolation, poverty and abuse. The authors introduce a framework for belonging from the literature and then present a study exploring the views of people with…
Descriptors: Intellectual Disability, Social Isolation, Poverty, Guidelines
Puyalto, Carol; Pallisera, Maria; Fullana, Judit; Vilà, Montserrat – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Despite an increase in inclusive studies in recent years, research on the views of the people with and without disabilities who have participated in these studies is scarce. The aim of this study was to explore the perceptions and views of advisors with intellectual disabilities and non-disabled researchers who collaborated together on…
Descriptors: Attitude Measures, Intellectual Disability, Questionnaires, Researchers
Thoresen, Stian H.; Fielding, Angela; Gillieatt, Sue; Blundell, Barbara; Nguyen, Liem – Journal of Intellectual Disabilities, 2017
Lao People's Democratic Republic (PDR) has experienced significant economic growth in the last two decades. While access to education, health, and employment for people with disabilities has also improved markedly, people with intellectual disabilities are still among the most vulnerable in society. This article presents findings from a screening…
Descriptors: Intellectual Disability, Foreign Countries, Case Studies, Pervasive Developmental Disorders
Gray, Jennifer A.; Kim, Jinsook – Journal of Applied Research in Intellectual Disabilities, 2017
Background: A paucity of information is available on direct care workers' (DCWs') experiences with loss when their clients (people with intellectual and developmental disabilities [I/DD]) die. This study explored DCWs' grief experiences, their coping methods and their needs for support. Methods: A thematic analysis approach was used to examine…
Descriptors: Grief, Caregivers, Death, Intellectual Disability
Neely-Barnes, Susan; Zanskas, Stephen; Lustig, Daniel; Duerr, Rachel; Zhao, Minna – Rehabilitation Research, Policy, and Education, 2016
Purpose: We sought to understand the experiences of family members and direct care staff of adults with intellectual and developmental disabilities in a private pay day program focused on socialization and recreational skills. Method: Two focus groups were held with parents/caregivers and one with staff. Using an interpretive method, two…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Focus Groups
O'Leary, Lisa; Taggart, Laurence; Cousins, Wendy – Journal of Applied Research in Intellectual Disabilities, 2018
Background: The health-related behaviours of people with intellectual disabilities may be determined by organisational influences. This innovative study aimed to explore managers' and staffs' perspectives on organisational influences on the promotion of healthy behaviours for this population. Method: A qualitative methodology was employed. Four…
Descriptors: Health Behavior, Life Style, Intellectual Disability, Barriers
Weise, Janelle; Fisher, Karen R.; Trollor, Julian N. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Generalist mental health professionals are inadequately equipped to meet the rights of people with intellectual disability. A better understanding of the attributes of effective professionals may assist in the development of workforce capacity in this area. Methods: Twenty-eight family/support persons of people with intellectual…
Descriptors: Mental Health Workers, Allied Health Personnel, Intellectual Disability, Focus Groups
Mitchell, Fiona; Stalker, Kirsten; Matthews, Lynsay; Mutrie, Nanette; Melling, Chris; McConnachie, Alex; Murray, Heather; Melville, Craig A. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Adults with intellectual disabilities (ID) experience significant inequalities and tend to be more sedentary and less physically active than the wider population. Walking programmes are an effective way to increase physical activity (PA) but have not been used in studies involving adults with intellectual disabilities. Method: Nineteen…
Descriptors: Adults, Intellectual Disability, Physical Activities, Qualitative Research