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Direct linkWessels, Marleen D.; van der Putten, Annette A. J.; Paap, Muirne C. S. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Knowledge about the quality of assessment methods used in the support of people with profound intellectual and multiple disabilities (PIMD) is scarce. This study aimed to provide an overview of the assessment methods used in practice and to examine whether these instruments were studied for their psychometric properties for people with…
Descriptors: Foreign Countries, Severe Intellectual Disability, Multiple Disabilities, Evaluation Methods
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – International Journal of Developmental Disabilities, 2024
Families with a child with profound intellectual and multiple disabilities (PIMD) have to manage the child's pervasive support needs. To ensure that families are able to manage these needs, they should be properly supported. However, knowledge about the specific support needs of these families is sparse and fragmented, nor is it known if and which…
Descriptors: Family Needs, Children, Severe Intellectual Disability, Multiple Disabilities
Kruithof, Kasper; IJzerman, Lisa; Nieuwenhuijse, Appolonia; Huisman, Sylvia; Schippers, Alice; Willems, Dick; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2021
Background: Since the life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents. Method: To explore how parents and siblings of persons with PIMD view siblings' role regarding future care/support for their family member, we interviewed eight…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Siblings, Role
Nieuwenhuijse, Appolonia M.; Willems, Dick L.; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2020
Background: Quality of Life (QoL) may be a factor in physicians' decisions on treatment of persons with Profound Intellectual and Multiple Disabilities (PIMD). We explored the perception of physicians on the QoL of persons with PIMD. Method: We conducted semi-structured interviews with seven experienced physicians treating persons with PIMD,…
Descriptors: Physicians, Attitudes, Quality of Life, Severe Intellectual Disability
Foreman, Phil; Arthur-Kelly, Michael; Pascoe, Sue – Journal of Intellectual & Developmental Disability, 2007
Background: The outcomes of a pilot program of staff development in communication support in the context of observed changes in student behaviour states and interactive abilities are reported. Participant reports about the impact of the program on their professional practices are included. Method: Six teachers and six teacher aides in special…
Descriptors: Special Schools, Teacher Aides, Pilot Projects, Program Effectiveness
Clifton, M.; And Others – 1993
This report describes a project which surveyed providers and purchasers of nursing services within the National Health Service in England on what is available and what is needed in staff training for those working with individuals having mental retardation and challenging behaviors and/or mental illness. Section 1 describes the methodology of the…
Descriptors: Behavior Change, Behavior Disorders, Behavior Modification, Emotional Disturbances
