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Direct linkvan den Driessen Mareeuw, Francine A.; Coppus, Antonia M. W.; Delnoij, Diana M. J.; de Vries, Esther – Journal of Applied Research in Intellectual Disabilities, 2020
Background: People with Down syndrome (PDS) have complex healthcare needs. Little is known about the quality of health care for PDS, let alone how it is appraised by PDS and their caregivers. This study explores the perspectives of PDS, their parents and support staff regarding quality in health care for PDS. Method: The present authors conducted…
Descriptors: Down Syndrome, Health Services, Attitudes, Parent Attitudes
Oulton, K.; Sell, D.; Gibson, F. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: The need to review health service provision for children and young people (CYP) with disabilities and their families in the United Kingdom has been expressed in multiple reports--the most consistent message being that services need to be tailored to meet their individual needs. Our aim was to understand the hospital-related needs and…
Descriptors: Intellectual Disability, Hospitals, Health Services, Children
Dillenburger, Karola; McKerr, Lyn; Jordan, Julie Ann; Devine, Paula; Keenan, Mickey – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Children with autism spectrum disorder are increasingly educated in mainstream classrooms in the United Kingdom (Wilkinson & Twist, "Autism and Educational Assessment: UK Policy and Practice." NFER, Slough, 2010), and some employers are now specifically seeking out staff on the autism spectrum. Does that mean that we are…
Descriptors: Autism, Pervasive Developmental Disorders, Surveys, Children
